Our story with Cystic Fibrosis started shortly after Aug. 30 2013
when our son Riley was born. We had driven 30 hours straight across the
country to get there for his birth and saw him for the 1st time when he
was 10 minutes old! We were already in love but there is nothing that
can describe the well of love and emotion when they first put him in our
arms. A few days later when they told us the blockage in his intestines
most likely meant he had Cystic Fibrosis and asked if we wanted to
continue with his adoption we were astounded. Not at the diagnosis but
that they thought we would back out. There was never any question, our
hearts were Riley's the minute his birthmom told us she had selected us
as the adoptive parents for her son. We really had no idea what Cystic
Fibrosis was or what it would mean for our lives and more importantly
for Riley's life, but it didn't matter, we were his parents and we
were/are in it for the long haul! We want it to be a LONG, LONG haul! We
want Riley to have a LONG, HAPPY life full of doing and being anything
and everything he ever dreams of doing and achieving! For that to happen
we need a cure. We need advances in treatment. That is why we are
raising money for the CF Foundation, they do so much for the fight,
families and those living with CF, please help us make a difference.
There are approximately 30,000 Americans living with cystic fibrosis.
They are moms, dads, sisters, brothers, daughters, sons, friends and
co-workers who struggle every day just to breathe. We walk for them.
Will you join us? All we need you to do to become a member of our team
is click on the "Join our Team" button. From there you can make a
donation and start your fundraising.
By becoming a member of our team and/or making a donation, you are
joining a growing group of people committed to finding a cure for cystic
fibrosis. Together, we are adding tomorrows to the lives of people
living with CF by supporting the search for a cure.
Great Strides is a fun, family-friendly event that raises awareness and support for people with CF and their families.
Connect With Us
Due to the COVID-19 pandemic, indoor events sponsored by the CF Foundation are strictly prohibited at this time. Scheduled outdoor events must adhere to strict requirements to minimize the risk of COVID-19 infection. Events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
IMPORTANT NOTE ON ATTENDANCE AT OUTDOOR FOUNDATION EVENTS:
To minimize the risk of COVID-19 infection, attendees at CF Foundation events must adhere to the following requirements:
Practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household at all times
Face masks strongly encouraged and expected to be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should not attend CF Foundation events where there is risk of interacting with someone outside of their household.)
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19. People with CF should maintain a safe 6-foot distance from persons outside of their household at all times.
FOR YOUR SAFETY AND THE SAFETY OF OTHERS:
For the health and wellbeing of the CF community, those eligible to be vaccinated are required to be fully vaccinated to join us in-person for the event. If you are not fully vaccinated, we invite you to participate virtually if that option exists.
We do not plan to ask for you to provide proof of vaccination. We are, however, counting on the fact that you appreciate the potential consequences of exposing members of the CF community to COVID and will abide by this requirement.
We cannot guarantee that all people in attendance at the event, including participants, sponsors, volunteers, and vendors, have been fully vaccinated.