Our story with Cystic Fibrosis started shortly after Aug. 30 2013
when our son Riley was born. We had driven 30 hours straight across the
country to get there for his birth and saw him for the 1st time when he
was 10 minutes old! We were already in love but there is nothing that
can describe the well of love and emotion when they first put him in our
arms. A few days later when they told us the blockage in his intestines
most likely meant he had Cystic Fibrosis and asked if we wanted to
continue with his adoption we were astounded. Not at the diagnosis but
that they thought we would back out. There was never any question, our
hearts were Riley's the minute his birthmom told us she had selected us
as the adoptive parents for her son. We really had no idea what Cystic
Fibrosis was or what it would mean for our lives and more importantly
for Riley's life, but it didn't matter, we were his parents and we
were/are in it for the long haul! We want it to be a LONG, LONG haul! We
want Riley to have a LONG, HAPPY life full of doing and being anything
and everything he ever dreams of doing and achieving! For that to happen
we need a cure. We need advances in treatment. That is why we are
raising money for the CF Foundation, they do so much for the fight,
families and those living with CF, please help us make a difference.
There are approximately 30,000 Americans living with cystic fibrosis.
They are moms, dads, sisters, brothers, daughters, sons, friends and
co-workers who struggle every day just to breathe. We walk for them.
Will you join us? All we need you to do to become a member of our team
is click on the "Join our Team" button. From there you can make a
donation and start your fundraising.
By becoming a member of our team and/or making a donation, you are
joining a growing group of people committed to finding a cure for cystic
fibrosis. Together, we are adding tomorrows to the lives of people
living with CF by supporting the search for a cure.
Great Strides is a fun, family-friendly event that raises awareness and support for people with CF and their families.
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.