Our story with Cystic Fibrosis started shortly after Aug. 30 2013
when our son Riley was born. We had driven 30 hours straight across the
country to get there for his birth and saw him for the 1st time when he
was 10 minutes old! We were already in love but there is nothing that
can describe the well of love and emotion when they first put him in our
arms. A few days later when they told us the blockage in his intestines
most likely meant he had Cystic Fibrosis and asked if we wanted to
continue with his adoption we were astounded. Not at the diagnosis but
that they thought we would back out. There was never any question, our
hearts were Riley's the minute his birthmom told us she had selected us
as the adoptive parents for her son. We really had no idea what Cystic
Fibrosis was or what it would mean for our lives and more importantly
for Riley's life, but it didn't matter, we were his parents and we
were/are in it for the long haul! We want it to be a LONG, LONG haul! We
want Riley to have a LONG, HAPPY life full of doing and being anything
and everything he ever dreams of doing and achieving! For that to happen
we need a cure. We need advances in treatment. That is why we are
raising money for the CF Foundation, they do so much for the fight,
families and those living with CF, please help us make a difference.
There are approximately 30,000 Americans living with cystic fibrosis.
They are moms, dads, sisters, brothers, daughters, sons, friends and
co-workers who struggle every day just to breathe. We walk for them.
Will you join us? All we need you to do to become a member of our team
is click on the "Join our Team" button. From there you can make a
donation and start your fundraising.
By becoming a member of our team and/or making a donation, you are
joining a growing group of people committed to finding a cure for cystic
fibrosis. Together, we are adding tomorrows to the lives of people
living with CF by supporting the search for a cure.
Great Strides is a fun, family-friendly event that raises awareness and support for people with CF and their families.
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated June 15, 2022. To reduce the risk of COVID-19 the Foundation is taking steps to host safe events for our community. Please be advised that events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
To minimize the risk of COVID-19 infection, we ask that attendees at CF Foundation events follow these steps:
Where mandated, practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household.
Face masks are encouraged and should be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should only attend outdoor CF Foundation events where they are able to distance and stay within their family group.) NOTE: For events hosted by the CF Foundation, masks will be made available on-site, when possible.
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, and by covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19.
For indoor events, it is CFF policy to invite only one person with CF to be in-person at the event at a time. For outdoor events, people with CF should maintain a safe 6-foot distance from persons outside of their household at all times.
FOR YOUR SAFETY AND THE SAFETY OF OTHERS:
For the health and well-being of the CF community, we strongly encourage that participants be fully vaccinated and have received the CDC recommended booster shot when joining us in-person for the event.
Certain CF Foundation events may require vaccination to attend.
Participants are strongly encouraged to test within 24 hours prior of arrival at an event or meeting, or as close as possible to the time of departure (if traveling).
Please be advised certain events, localities, and venues may require you to be fully vaccinated and show proof of vaccination. We will communicate these requirements in event communications.
For events where the CF Foundation requires full vaccination, meeting participants must be fully vaccinated against COVID-19 at least two weeks before the date on which you will first attend the meeting. Registration and attendance at such events may require agreement to health and safety protocols and/or COVID liability waivers.
We are counting on the fact that you appreciate the potential consequences of exposing members of the CF community to COVID-19 and will not attend an event if you test positive, or have been recently exposed to COVID-19.
We cannot guarantee that all people present at the event, including participants, sponsors, volunteers, vendors, or others, have been fully vaccinated.