Welcome to our National Team TnT Great Strides walk page! I'm so glad you stopped by!
Our Great Strides journey is a very unique one, and actually began ten
years ago, when I met a woman whose newborn granddaughter, Faith, had
just been diagnosed with Cystic fibrosis. I became inspired to help them
find a cure, so I joined their Great Strides team, Team FaithFULL, and
began fundraising and spreading awareness about CF. Little did I know,
not only was I fundraising for a cure for thousands of young people... I
was actually fundraising for a cure for my own future children.
In
2008, I became a proud mommy of twin daughters, Taryn and Teagan. Everything
seemed perfect... until I got a call that no parent wants to get. Taryn's
newborn screen test showed that she tested positive for Cystic fibrosis.
Life seemed to stop for a moment, as the devastation set in. But just
as quickly, a wave of calmness and strength took over. I had been
unknowingly prepared for this. I knew all about CF. I had an amazing
support system of friends and family, and many other CF parents I had
met through my Great Strides volunteering. I knew all about the amazing
resources the CF Foundation has for parents and patients. I knew all
about the work they are doing to help find a cure. And I knew just how
close they were coming to one.
That year, I formed my first Great
Strides team, Carin' For Taryn, and with the help of one of my best
friends and fellow CF mom, Stephanie Davis (Team FaithFULL), we chaired
our first Great Strides Walk. Over 25 teams and 500 walkers showed up
that day to walk for a cure! In 2010, my daughter Taya was born... and
diagnosed with CF. So our team name Carin' For Taryn changed and became
Team TnT (for Taryn and Taya) and we became a National Team with the help of hundreds of friends
and family all across the nation, who have set up Team TnT walk teams in St. Louis, Chicago, Redding, Tahoe, and Sacramento! Collectively, we are helping to KABOOM Cystic fibrosis for good!
2015
will be our EIGHTH year walking in Great Strides, and my eighth year
Chairing the event! Our Sacramento Great Strides Walk has grown tremendously
with close to 80 teams and 2000 walkers represented! In these past
eight years that we've organized the Walk, our collective efforts have
helped to raise over $1 MILLION DOLLARS... and over 90 cents of every
dollar raised goes straight to researching a cure! We've made many new
friends, helped get CF on the newborn screening test in CA and the
newest exciting news is the combo drug that was just approved for
Taryn's and Taya's specific mutations has just been deemed a
"Breakthrough Medication" by the FDA! We have seen HUGE progress over
the last few years, and it's all thanks to the generosity and support
from donors like YOU!
I fundraise and spread awareness for Taryn,
Taya, and the 75,000 others world-wide who battle CF, so they can have
the chance to live a HEALTHY, and LONG life. 50 years ago, CF kids
rarely lived to the age of 5. Today, the median age of life expectancy
is 41. With your help, we can soon make CF stand for Cure Found!
Join our team and help add tomorrows!
There are two
ways you can become a member of our National Family team.
1.) You can join any of our teams across the country as a walker and help fundraise
by clicking the Join Our Team Button above.
2.)
You can lead your own team under our National Family team in a walk local to
you and help recruit others to walk with you by clicking Find a Walk and
following the prompts to register for a walk near you.
By
becoming a member of our team and making a donation, you are joining a growing
group of people committed to finding a cure for cystic fibrosis. Together, we
are adding tomorrows to the lives of people living with CF by supporting the
search for a cure.
Thank you so much for your love and support as we add more tomorrows for Taryn, Taya, and the 75,000 others in this world fighting CF! We look forward to having you as a member of Team TnT!
Check out our inaugural Team TnT Video! 2015's video is coming soon!
http://www.youtube.com/watch?v=FnsaRtNZ3bU
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.