Our Great Strides Story
We are less than a week away from the Great Strides Walk and are continuing to raise support and awareness for Cystic Fibrosis research. Our family will be walking in support of our son, Jacob, who was 27 days old when he was diagnosed with cystic fibrosis.
CF is a complex disease with symptoms that differ widely in their presentation from person to person. With supporters like you by our side, the Cystic Fibrosis Foundation continues to lead the way in the fight against CF, fueling extraordinary medical and scientific progress. Amazingly, the life expectancy of someone born with CF has doubled in the last 30 years. As people with CF live longer, their disease manifests in different ways, forcing them to confront new challenges related to life with CF. While CFTR modulators (such as Trikafta) represent a tremendous feat in addressing the underlying cause of CF, they do not provide a cure for the disease.
Though we are deeply grateful that Jacob is doing so well, the reality is that many people with CF do not benefit from existing therapies either because their disease is too advanced or because their specific genetic mutations will not respond. Our prayer is that the ongoing work through the CF Foundation will continue to make the path ahead filled with even more hope and good news for everyone living with cystic fibrosis.
Your support makes a difference. Will you join us?
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.