Jacob's Champions

Our incredible son, Jacob, was only 27 days old when he was diagnosed with cystic fibrosis – a rare, life shortening, genetic disease that affects the lungs, pancreas, and other organs, often making it difficult to breathe. CF is a complex disease and the types of symptoms and their severity differ widely from person to person.

Thanks to innovative therapies from his CF physicians, new drug developments, a mountain of support from friends and family, and the unbelievable steadfastness of God, Jacob is now approaching 2.5 years old and is thriving! Though this road with our son is not what we would have chosen, we marvel at the life that is possible for him thanks to countless people who work tirelessly to fund new treatments, new therapies, and new research.

With supporters like you by our side, the Cystic Fibrosis Foundation continues to lead the way in the fight against CF, fueling extraordinary medical and scientific progress. Amazingly, the life expectancy of someone born with CF has doubled in the last 30 years. As people with CF live longer, their disease manifests in different ways, forcing them to confront new challenges related to life with CF. While CFTR modulators (such as Trikafta) represent a tremendous feat in addressing the underlying cause of CF, they do not provide a cure for the disease. 

Though we are deeply grateful that Jacob is doing so well, the reality is that many people with CF do not benefit from existing therapies either because their disease is too advanced or because their specific genetic mutations will not respond. Our prayer is that the ongoing work through the CF Foundation will continue to make the path ahead filled with even more hope and good news for everyone living with cystic fibrosis.

Will you join us?

The Great Strides event provides a fantastic opportunity for people to come together to make a difference in the lives of people with CF. To join us in person at Great Strides on May 18, click the “Join This Team” button. Once you register, it’s easy to make a donation.  

If you're unable to join us in person but would still like to make a contribution, click the "Donate To A Team Member" button and select any member to receive your donation. All support goes toward helping Jacob's Champions reach our goal. 

Our team is determined to ensure that every person with CF can live a long, healthy life, without the limitations caused by this disease. We are deeply grateful for your willingness to join us.