Lenna was diagnosed with Cystic Fibrosis (CF) before she was even born. We found out she would have CF when I was only 20 weeks pregnant. Nothing expecting parents ever want to hear, that your child would be born with a life-threatening disease.
Fast forward to today, Lenna has overcome many obstacles in her 5 years earth side. With the help of medications like KALYDECO she is able to thrive and fight CF, she is truly our little warrior.
There are approximately 30,000 Americans living with cystic fibrosis? They are moms, dads, sisters, brothers, daughters, sons, friends and our own Lenna who struggle every day just to breathe. I walk for them. Will you join me and support my fundraising goal?
Because of all the support and donations from you, real progress has been made for those who have CF, but there is still no cure for this devastating disease and many lives are cut far too short. We've come so far, but there's still so much work to do. I will not stop striding until all those with cystic fibrosis have a cure. Will you join Lenna's Tribe? Will you join our walk May 5th? Please consider donating to my Great Strides fundraising campaign today and let's finally find the cure for CF!
We are at a pivotal moment in the history of cystic fibrosis and your support matters. Your gift will help add tomorrows to the lives of people like Lenna with cystic fibrosis by supporting groundbreaking research and medical progress towards a cure. Please help Lenna's Tribe reach our fundraising goal!
Please feel free to reach out to me with any questions, megrombout@gmail.com
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.