Lenna was diagnosed with Cystic Fibrosis (CF) before she was even born. We found out she would have CF when I was only 20 weeks pregnant. Nothing expecting parents ever want to hear, that your child would be born with a life-threatening disease.
Fast forward to today, Lenna has overcome many obstacles in her 5 years earth side. With the help of medication like KALYDECO she is able to thrive and fight CF, she is truly out little warrior.
There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, friends, co-workers and Lennas who struggle every day just to breathe. This year we will be doing an IN PERSON WALK for them, finally! To become a member of Lenna's Tribe and walk with us on MAY 7th, just click on the "Join This Team" or "Make a Donation" button. From there, you will be able to become apart of Lenna's Tribe and walk with us May 5th or donate. We love the support any way!
By joining our team and making a donation, you are joining a growing group of people committed to finding a cure for cystic fibrosis. We will not rest until all those with cystic fibrosis have a cure. The time is now. Together, we can conquer this disease.
Great Strides is a fun event that provides a fantastic opportunity for family, friends, students, and colleagues to come together to make a difference in the lives of people with CF -- join Lenna's Tribe today!
If you have any questions please don't hesitate to reach out to me, megrombout@gmail.com
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.