Please join Team Ryan’s Faith at the Great Strides walk to cure cystic fibrosis on Sunday, May 19, 2023 at Jimmie's of Savin Rock in West Haven. Please support our son Ryan, in his fight by registering to walk and/or making a donation directly on this page.
We are excited to continue at this location on the boardwalk overlooking the beautiful beach. The check-in time is at 9AM and the walk starts at 10AM
Thank you from the bottom of our hearts for your love, support and generosity. You are making a difference in adding more tomorrow for those people living with cystic fibrosis.
Throughout Ryan's lifetime with his challenges and struggles with his cystic fibrosis it has been a long journey of numerous hospitalizations due to lung infections which required Intravenous antibiotics, high caloric diets, tube feedings, surgeries, therapy and and being diagnosed at age 14 with CF related Diabetes. Ryan fights everyday to stay healthy but through it all he has never lost faith or hope. He persevered. Ryan is so brave, strong, resilient and courageous!
Ryan is now 28 years old and he is maintaining and managing his health and is thriving and growing while he is on numerous medications, airway clearance, and a miraculous drug called Trikafta for the last 5 years now that has increased his lung function and has been a huge breakthrough for people living with this disease.
Ryan is working full time at Walmart and is a gifted, talented and brilliant Author and Writer of three books he self published through Amazon. His first book, “How to Overcome Life’s Struggles Through Courage & Determination, his second and third books are psychological thrillers, “Daddy’s Little Girl” and “The Heart Collector” (The Michael Peters series).
Ryan loves reading, writing, journaling, Meditation and collecting coins and glass blowing pieces.
Ryan is truly a blessing and an inspiration and he has such a beautiful soul with a loving spirit that lights up the world! Keep spreading your wings Ryan!
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.