Please join us for the Great Strides walk to cure cystic fibrosis on Sunday, May 7, 2023 at Jimmie's of Savin Rock in West Haven. Please support our son Ryan, in his fight by registering to walk and/or making a donation directly on this page.
Our team name is Ryan's Faith. The check-in time is at 9AM and the walk starts at 10AM on the boardwalk overlooking the beautiful beach. Please park in Jimmie's Restaurant parking lot.
Thank you from the bottom of our hearts for your love, support and generosity. You are making a difference in adding more tomorrow for those people living with cystic fibrosis.
Throughout Ryan's lifetime with his challenges and struggles with his cystic fibrosis it has been a long journey. Ryan fights everyday to stay healthy. He is not only maintaining his health but he is thriving while he is on numerous medications, airway clearance, and a miraculous drug called Trikafta for 4 years now that has increased his lung function. Ryan is so brave, courageous, and strong. We are so blessed and very proud of him. We walk for our son, our hero, Ryan.
We are in this together!
Connect With Us
IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.