Bethany and Lucy... why WE walk... THE TWINS!
We don't have Cystic FIbrosis ruling our daily lives, and that is because of all your incredible support!! The girls are able to go to school, play on TWO soccer teams, swim, do the school.musical, play violin, playoutside, fish... If you were able to talk to a parent of a kid with CF from 25 years ago, this was unheard of. Life expectancy was childhood... not the life we are leading. We are so blessed to be able to benefit from the incredible CF advances of the last 25 years and hope the advance keep coming and the disease is not longer a sentence, but something to treat, live with, and thrive in spite of! With the help of Trikafta, we are down to one vest treatment and no inhaled meds!!! The maintenance meds have decreased, too!
There are approximately 40,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, friends and co-workers who struggle every day just to breathe. We walk for them. Will you join us? All we need you to do to become a member of our team is click on the "Join our Team" button. From there you can make a donation and start your fundraising.
By becoming a member of our team and making a donation, you are joining a growing group of people committed to finding a cure for cystic fibrosis. Together, we are adding tomorrows to the lives of people living with CF by supporting the search for a cure.
Great Strides is a fun, family-friendly event that raises awareness and support for people with CF and their families.
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.