Twinsanity

Bethany and Lucy... why WE walk... THE TWINS!

 The twins have started middle school and entered the preteen era of hair, nails, and clothes. The days they warned me would be harder than the NICU are upon us. Yet, we are so lucky and blessed to have had the support of the CF foundation, Rainbow, and all our family and friends to get us to this beautiful chaos of the pre-teen years.

We don't have Cystic FIbrosis ruling our daily lives, and that is because of all your incredible support!! The girls are able to go to school, play on TWO soccer teams, swim, golf, play outside, ride their bikes... If you were able to talk to a parent of a kid with CF from 25 years ago, this was unheard of. Life expectancy was childhood... not the life we are leading. We are so blessed to be able to benefit from the incredible CF advances of the last 25 years and hope the advance keep coming and the disease is not longer a sentence, but something to treat, live with, and thrive in spite of! Due to Trikafta and its success for the twins, we are down to just 1 treatment a day and no breathing therapy! They still need some maintenance meds and night feeds, but they are making huge progress.

There are approximately 40,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, friends and co-workers who struggle every day just to breathe. We walk for them. Will you join us? All we need you to do to become a member of our team is click on the "Join our Team" button. From there you can make a donation and start your fundraising.

By becoming a member of our team and making a donation, you are joining a growing group of people committed to finding a cure for cystic fibrosis. Together, we are adding tomorrows to the lives of people living with CF by supporting the search for a cure.

Great Strides is a fun, family-friendly event that raises awareness and support for people with CF and their families.