CJ's Squad

Our Great Strides Story

Cj was diagnosed with cystic fibrosis at 9 days old, it completely rocked our world. While we were terrified and overwhelmed by the emotions and information coming at us, we never realized that our family was going to be as strong and resilient as it is now, 4 years later.  Cj's sister instantly turned from the big sister role, to protector and care giver. She makes sure he has everything he needs at all times. From making sure he takes his meds, to transitioning from play to treatment time.  She knows that if Cj is doing his treatments, she is having quiet time too so that cj isn't missing out on anything.  It is truly a family affair when it comes to Cj making sure he gets his airway clearance and nebulizer treatments done to stay healthy.  We are so proud of the these two, taking care of each other and being each other's biggest supporters. 

Cj is so strong.  When he was diagnosed until he turned one, he had to go to University of Iowa once a month to make sure he was growing properly,  getting the appropriate nutrients. After he turned 1, he graduated to going to clinicals once every three months. Even though these days are exhausting and he has to be poked, and proded, he takes every appointment like a champ. On top of these days, he has to take pills every time he eats along with more meds morning and night, and he never forgets. 

Cj has to be one of the luckiest boys, he has so many people in his life that love and care about him, from his grandparents,  great grandparents, aunts, uncles, cousins, extended family, and so many friends. We have to be extra cautious about him getting sick, making sure his meds are taken appropriately,  but most importantly, helping him know that Cj is a regular boy, not just a boy with CF and everyone has rallied together to help us do that. We are so grateful for each and every person in our life. 

We walk for a cure for Cj and all people with cystic fibrosis. By joining our team, you can help us end this disease!

To become a team member, click the “join this team” button. Once you register, it’s easy to donate and start fundraising.

Our team is determined to ensure that every person with CF can live a long, healthy life, without the limitations caused by their disease. We can’t wait for you to join us.