Casey's Batters DC

Welcome to Casey's Batters DC - same team, 2 opportunities to walk in 2024!

There has been incredible progress in the science to cure CF. Currently over 90% of CF patients have access to extremely effective drugs called modulators. These patients still have CF, but by taking these oral meds their symptoms decrease dramatically and as a result they are living longer lives. This is fantastic news. However, due to the specifics of Casey's genetic makeup, Casey is in the 6% of patients who are not eligible to take these life changing drugs. Fortunately, the Cystic Fibrosis Foundation in now focusing on how to help that 6%, likely by way of genetic therapies.

These genetic therapies would effectively be a CURE FOR ALL cystic fibrosis patients. We are close, but we are not there yet. And we will not stop until CF stands for CURE FOUND!

Once again we are asking you to help fund this life saving research. CF is an orphan disease which means that almost all of the money needed for research comes from private donations. Our family has poured our energy into asking for financial help and raising awareness. We are walking in Great Strides twice this year - May 1 (Bethesda) and June 1 (Washington DC).

Thank you for your support in the past. We hope that you can help us again this year and until we are able to say CF STANDS FOR CURE FOUND. We will not stop "until it's done"!

With much hope and gratitude,

Jennifer & Dennis