Dayson is just like any other normal, energetic and fun boy, and you would never guess that he had a disease, but he has cystic fibrosis. He was diagnosed when he was 8 months old. Once we figured out that it was cystic fibrosis and he was put on the right medications, his health improved drastically. He has been pretty healthy as he fights this disease but has been hospitalized 15 times due to complications caused by this disease. Dayson has to take a lot of different medications every day along with breathing treatments and chest physiotherapy. He doesn't know any different and we try to make it a routine, just like brushing your teeth every day. There are days that he is bummed that he has to take so many meds and do so many treatments, but he also knows it makes him feel and breathe better, so he hardly ever complains. He goes to the CF clinic every 3 months for a 3 - 4 hour visit to meet with the Pediatric Pulmonologist, Respiratory Therapist, Social Worker, Nutritionist, and nurse. He is such a good sport about all of the poking and prodding and questions. He is such a sweet kid, who at times can be a punk but for the most part he is such a sweetheart and everyone who knows him, loves him. We are so grateful to have him in our family and that is why this fundraiser is so important to us. The average life span for those living with Cystic Fibrosis is about 40 years old. When he was diagnosed 12 years ago the average life span was 32, so it keeps climbing because of all of the research and new medications coming available. For instance, he started a drug trial in July of 2018 and ever since he started on that study, his health has drastically improved. He just celebrated a year without a hospital stay, which for him his HUGE. We are so grateful for the new medication and look forward to whats coming next for our community. In order for the life span to keep climbing, we need to keep donating money for more and new research and new medications. Any amount will help and add up if we all pitch in. Also, thank YOU so much for taking the time to read this and support us in this fight against Cystic Fibrosis. Love, The Judds
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.