Usually you hear from me about my niece, Ella. BUT this year we're sharing a message directly from Ella. Please read her words about how Cystic Fibrosis effects her life and why your donation is so important. This year our Great Strides Walk is on May 11, 2019 at Esther Short Park in Vancouver, WA. We are excited to lace up and walk again!!!
Every year for the past 15 years, spring brings thoughts of summer vacation, sun, and outside. But it brings other thoughts, too. Spring is the time of year when we start thinking about Great Strides, when we start worrying about donations, sending out reminder emails and seeing who really cares about us and who doesn’t. It brings the struggle of writing the best words that describe what CF means, and why it’s so important that we get donations from people like you, even just five dollars. Usually it’s my mom that handles all of that, but this year it’s up to me to come up with the best way to explain why your donations are just so important. So let’s go.
When all of you think about CF and how it affects me, what do you think of? The time spent doing treatments, the amount of pills I’ve taken, the uncertainness about the future? Probably, because that’s what we’ve been telling you for years. So I’m not going to take the time to go over all of that again. Instead, I want you to think about all the things that I’m missing while I’m doing those treatments, while I’m taking those pills and while I’m worrying about my future. Every day I spend two hours doing breathing treatments, and that’s if I’m not sick. If I’m sick it’s more. In those two hours, instead of sitting strapped to a machine, I could be:
Hanging out and making memories with friends
Exploring new places and learning more about the world
Working on projects that will help me leave a mark
Every day I take 30 pills. If I didn’t have to take those pills, I wouldn’t have to:
Constantly be worried that I’m getting enough calories to make the pills work correctly
Double check my bag every time I leave the house to make sure that I have the pills I need to simply eat food
Have to say no when people are sharing food at school because I don’t have the enzymes I need to eat it
CF brings so much uncertainty and extra worries when it comes to the future that it makes thoughts of high school and college (both things I’ve had to spend a lot of time thinking about since I’m starting high school in the fall) so different than the average person’s. When I’m thinking about my future I constantly have to consider:
If where I want to live is close enough to a CF clinic
If my dream job will make enough money to support all the appointments, medications, and hospital stays that I’ll have to deal with
Whether or not the teams and clubs I want to be a part of in high school will get in the way of my treatments and doctor’s appointments
If I didn’t have CF I wouldn’t have to spend so much time missing out on things, worrying, being frustrated, sad, angry, afraid, unsure, and unhappy. If I didn’t have CF, my life would be so much better.
And that’s where you come in. We’re asking you for your donations so that the researchers that are working tirelessly have enough money to finally finish the incredible medications that are in the works that will be the closest to a cure that we’ve ever been. So that more people all over the world will have access to treatments that will change their lives forever. So that the life expectancy for people with CF will someday be the same as the life expectancy of a normal person. So that I, and all the other people living with CF, will be able to explore the world, make memories, live their dreams, and make an impact on the world.
Please, take a moment out of your day to donate to our cause. Our fundraising goal is a high one and we need your help to get there. The CF foundation will make sure that your money goes where it is needed the most and all donations are 100% tax deductible.
Click on the “Donate To Dena” button at the top of this page to donate to our cause and help us and all other people with CF out.
To join us on May 11th for the annual Great Strides walk hit the “Join Dena's Team” button. It’s a fun filled day at Esther Short Park with food and friends. I’d love to see you there! (For more information you can email Dena at email@example.com)
Give what you can, and then give a little more to give me more days and more time to spend time with family and friends, dream about my future and enjoy a life with more happy moments and less sad ones.
Together we can make CF stand for Cure Found.