In 1998 our first born, Sara Phenix, our beautiful little girl arrived. Nine months later the doctor told us it was not just a persistent cough low weight but Cystic Fibrosis, a genetic disorder that would slowly weaken and ultimately kill my baby. BUT science was making progress life expectancy was increasing and new medicines were coming out, median life expectancy was up to 30 years old.
On a daily basis this genetic disorder is working against Sara and the 30,000 other suffers, since the moment they took their first breath. There is currently no cure, the common cold can put them in the hospital for weeks. They learn from a young age how to navigate hospitals and doctor visits. But they have spirit, resilience and perseverance, they have dreams and aspirations.
So many like Sara, walk among us every day - serving coffee at Starbucks, rushing to class, checking you in at the doctor's office or your local Realtor, and online support. They have dreams and hopes. just like you and me
Adding Tomorrows is only a possibility with advancements in science. We are walking to support Sara's hope and other's like Sara - for their tomorrows. Your contribution helps make tomorrow possible.