Dear Friends and Family,
During these challenging times, I am sure that you are not surprised that the annual Great Strides Walk to cure Cystic Fibrosis (CF) has been cancelled for 2020. The Coronavirus wreaks havoc on the lungs of otherwise healthy individuals, and for those with CF, this time in history is especially dangerous. It is sad that we cannot come together in person for the Walk, to honor those whom we have lost, to walk for those who struggle, and to offer hope to the families whose children and young adults suffer with the disease.
Our nephew, Brent, recently observed that the habits of social distancing, frequently washing our hands, avoiding large crowds, being aware of our surroundings – these are and have been the daily measures that he and others living with Cystic Fibrosis have practiced since they were old enough to know better. It is unfortunate that it has taken an easily transmittable, world-wide virus to help us to better understand the fear and vulnerability experienced by people suffering daily with diseases like Cystic Fibrosis.
Brent and his wife, Kalli, have had a good year. He continues to work in the field of transport logistics. I mentioned last year that Brent was asked to temporarily manage a site in Pensacola, FL, while his company searched for a permanent employee at that location. It was a great opportunity for him to branch out, to learn new management skills, and to build a solid reputation in the field. As a result, Brent received a promotion, so he now manages a team of logistics coordinators, while overseeing country-wide projects of his own. Kalli coordinates community outreach for Chic-fil-A in the Spartanburg area, and evidenced by her enthusiasm, she clearly loves what she does and the people whom she serves.
Unfortunately, the year has not been without its challenges. In the fall, Brent received a course of intravenous antibiotics for two weeks to lessen the buildup of bacteria in his lungs and to bolster his immune system. (This kind of treatment is called a “tune up” in CF lingo, and it is common when oral antibiotics are not as effective at reaching the bacteria.) After several days in the hospital, with the help of family members, he was able to administer the drugs himself at home. Self-treatment was not even possible just a few years ago, but with the help of medical advances, Brent was able to continue to work for most of the time that he was “tuning up.”.
Many of you have been contributing to this annual fund raiser for as long as I have been participating – twenty-six years – and I thank you sincerely for your tremendous support. Acknowledging that the economic landscape due to COV-19 is quite unsettled for all of us at this time, I am asking that you contribute only if you are able, and then only what you are able. I will continue to write my annual letters to you, and hopefully, we will be able to get back on track with our generous donations to CF in the coming years.
To contribute by check, make it payable to: Cystic Fibrosis Foundation, or simply CFF, and send it to me at 40 Overbrook Rd., Madison, CT 06443.
To donate here, please see the box below the photo of Brent and Kalli.
As always, from our family to yours, we thank you for your generous contributions, for your encouraging messages, and for your prayers!
Please stay well.