Team Miles: 953. Walk, run or cycle!
We hope that you are doing well in this time of Covid-19. What a different world we are all living in. May is upon us, time again for our annual Cystic Fibrosis walk. Our granddaughter, Sarah, was born with Cystic Fibrosis, a genetic lung disease; she is now 10 years old and doing well. She and her family are sheltering at home in Illinois, as Sarah is a high-risk person. Team Strolling for Sarah does an annual walk (about 3 miles or one hour) to support the Great Strides program which raises research dollars for this genetic lung disease. The exciting news is a new drug, Trikafta, which Sarah will be able to take when she is 12. It will treat some of the causes for her illness and not just the symptoms. Research is so important!
This year will be a “virtual walk”, each on our own, anytime between May 16th and June 5th. We both thought it would be fun to see how far we could walk over a 3 week period, so we’re going to walk,run or cycle more than once. Join in our effort to see how many miles we all can cover. Send us your information and let us know how far you walked (ran, or cycled) and maybe attach an electronic photo. Together can we reach 650 miles? The great thing about a virtual walk, is that you can do it any time you like and it can be as short or long as you want! We’ll keep you posted on our website below. Please observe the rules for social distancing.
Why through June 5th (6/5)? Way back in 1965, a little boy overheard his parents talking about the disease. He thought they said “65 roses” instead of cystic fibrosis, which is a mouthful. So, the rose has been a symbol of our cause and 6/5 is always the day that the national Cystic Fibrosis Foundation holds its annual celebration.
Please join us to support Cystic Fibrosis research. Donate online above or Make your check payable to:
CFF (Cystic Fibrosis Foundation)
Memo: Strolling for Sarah CT
Mail to me Kate Smith at: 106 Vista Way, Bloomfield, CT 06002 anytime!