2020 Tampa Great Strides Ambassador - Skyler Timothy

Skyler_Local2020.png

Skyler Timothy is 19 years old. She currently works at Youfit Health Club in Carrollwood as a front desk person. She loves all aquatic activities, watching Netflix, her cat Sammy and hanging out with her fiancé Jake. Skyler was diagnosed with Cystic Fibrosis when she was 9 months old. This summer she is so excited to get married and start a life with her new hubby.

 “I am so excited to be the new ambassador for the Florida Gulf Coast Tampa Great Strides. Ever since I was diagnosed, my parents have been very involved with great strides. When Sheena Scott asked me to speak at the walks last year, I said yes with no hesitation. Then she asked me to be the ambassador, and it was an immediate yes. I’m so excited to help raise awareness. and get everyone pumped up for our events.”

2020 Tampa Great Strides Ambassador - Ronan

Tampa_Local2020.png

Ronan was born on August 26th 2018 weighing 6 lbs 12 oz. At his two week check-up we found out he had gained no weight, and were notified about the unfortunate results of his newborn screening. It was tough trying to make sense of everything as we sat there through a hurricane contemplating what his life would be like. Little did we know we would have a great team of doctors in addition to our incredible family and friends for much needed support. A year and a half later we find ourselves reflecting on how fast it went by, and how well Ronan has done so far. He's extremely active, loves to climb on anything and everything, has a great appetite, and never gives up the chance to chase after our cat and dogs. We're so excited for what's at stake in the coming years with regards to Trikafta for his age group, and other treatments coming down the pipeline!

About Our Virtual Great Strides Walk

65RosesChallenge.jpg

How do I participate?

Register to Participate Virtually. Register and participate virtually in the 65 Roses Challenge and help us stay the course and advance our mission in an uncertain time. While we cannot be together in person, we can be together in spirit and participate virtually - showing the strength of our community and passion to find a cure for all people living with cystic fibrosis.

Recruit. Recruit others to participate with you (at a safe distance or even from another state). Now that we are virtual, you can participate anywhere! Fundraise on Facebook to reach your goal. Create a virtual passion fundraising event by developing a fundraising event through your favorite hobby, activity, or passion.

Take the Challenge. We are excited to collaborate with the four chapters across Florida, for a unified walk this year!

65 Days. 4 Chapters. 1 Mission.

Join us as we celebrate over the course of 65 days (July 31- October 3) and walk across Florida. Together, we hope to recruit 1,650 walkers to virtually visit all 20-walk site stops along our 1,650-mile journey. During this time, we encourage everyone to register for the walk site of your choice, and log your miles (new app coming out soon), as well as raise a minimum of $65 each (or $650, $1,650, or whatever amount that is meaningful to you). On our walk day celebration, we will tally up how many miles we walked as a team and how much we were able to raise towards our goal of $750,000 across the state. Every mile and every dollar bring us closer to a cure, so get your family and friends to join us for our very first Florida Great Strides!

Share your Journey. Wear your CF Foundation branded apparel, custom team t-shirt, or a past Great Strides shirt while you walk, run, or ride. Share how you are participating in the 65 Roses Challenge by sharing your story and posting a selfie on Facebook, Twitter, and Instagram. Make sure to tag the Cystic Fibrosis Foundation (@CF_Foundation) and use the hashtags: #GreatStrides; #65RosesChallenge and #Together65 to keep the energy and momentum going strong!

Celebrate! We want to celebrate you and your participation in the 65 Roses Challenge! At the conclusion of your event you will receive a certificate of completion and the option to redeem a reward 30 days post event. Share your success on social by tagging the CF Foundation (@CF_Foundation) and use the hashtags: #GreatStrides; #65RosesChallenge or #Together65 to let everyone know you completed your 65 Roses Challenge.

Additional Event Details:

Our virtual statewide Great Strides campaign will run for 65 days, July 31- October 3rd. On Saturday, October 3rd at 10 am we will have a virtual walk celebration for all our teams and walkers. More details to follow.

Thank you Sponsors! We want to thank our generous national and regional sponsors - gold national sponsor, AbbVie, our silver national sponsor, Vertex, our bronze sponsors, Genentech and Gilead, and our regional sponsor, Mylan. We also want to thank our local sponsors who continue to help advance our mission – Community Champion Sponsor, Brown & Brown of Florida and Socius Foundation, our Mission Supporter, Allergan.

Questions? Sheena Scott: sscott@cff.org | or Nathan Maloney: nmaloney@cff.org (813) 374-9041