Bristol is an energetic and happy 4 year old princess. She was diagnosed with Cystic Fibrosis as a newborn after having emergency surgery for meconium ileus, a bowel obstruction that is common in cf infants. She loves going on walks/runs, dancing, being mischievous, playing dress up, and all things Disney. She loves animals, but is especially fond of her family dogs. She has the double delta F508 mutations and in January 2019 started Orkambi. She is currently active in (virtual) ballet and tap class and recently completed (homeschool) Pre-K. We are in awe of her positive attitude and compliance to her cf care at such a young age.
Bristol’s Pistols is a National Family Team with people walking in Washington, Indiana, New York, Arkansas, and Florida in her honor.
To learn more about Bristol and her cf journey you can follow her on Instagram @bristolspistols
Our family and friends are dedicated to finding a cure for Bristol. We are closer than ever to getting an actual cure and we won't stop UNTIL IT'S DONE! We are extremely thankful for your continued support in this endeavor. We couldn’t do it year after year without YOU!
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Due to the COVID-19 pandemic, indoor events sponsored by the CF Foundation are strictly prohibited at this time. Scheduled outdoor events must adhere to strict requirements to minimize the risk of COVID-19 infection. Events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
IMPORTANT NOTE ON ATTENDANCE AT OUTDOOR FOUNDATION EVENTS:
To minimize the risk of COVID-19 infection, attendees at CF Foundation events must adhere to the following requirements:
Practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household at all times
Face masks strongly encouraged and expected to be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should not attend CF Foundation events where there is risk of interacting with someone outside of their household.)
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19. People with CF should maintain a safe 6-foot distance from persons outside of their household at all times.
FOR YOUR SAFETY AND THE SAFETY OF OTHERS:
For the health and wellbeing of the CF community, those eligible to be vaccinated are required to be fully vaccinated to join us in-person for the event. If you are not fully vaccinated, we invite you to participate virtually if that option exists.
We do not plan to ask for you to provide proof of vaccination. We are, however, counting on the fact that you appreciate the potential consequences of exposing members of the CF community to COVID and will abide by this requirement.
We cannot guarantee that all people in attendance at the event, including participants, sponsors, volunteers, and vendors, have been fully vaccinated.