Ben's Brigade
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This is Ben. Ben is a funny, loving, energetic little boy with a chronic lung disease called cystic fibrosis (CF).
CF is a genetic illness that affects the lungs, sinuses, digestive system, and reproductive system. As little as 50 years ago, CF patients did not live to see elementary school. Thanks to fundraising efforts like Great Strides and the Cystic Fibrosis Foundation, the median life expectancy for someone with CF is 41 years. This is still not enough.
In order for someone to be born with CF, his/her parents must both be carriers of a CF-causing gene. Approximately 1 in 30 Americans is a carrier of the CF gene, and like us before Ben's diagnosis, most have no idea.
There are many new therapies and medications in the pipeline right now, but there is currently no cure for CF. This doesn't work for us, so we intend to fight until that changes.
Please join us. Every little bit helps. "Like" our Facebook page at www.facebook.com/bensbrigadeslc, make a donation, join our team, or just help us spread the word.
Thank you. We love you all.
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ATTENDANCE POLICY:
Due to the COVID-19 pandemic, indoor events sponsored by the CF Foundation are strictly prohibited at this time. Scheduled outdoor events must adhere to strict requirements to minimize the risk of COVID-19 infection. Events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
IMPORTANT NOTE ON ATTENDANCE AT OUTDOOR FOUNDATION EVENTS:
To minimize the risk of COVID-19 infection, attendees at CF Foundation events must adhere to the following requirements:
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19. People with CF should maintain a safe 6-foot distance from persons outside of their household at all times.