Christopher was born January 24th, 2012 and is a true blessing to our family. We learned of Christopher's diagnosis during pregnancy and quickly gathered as much information as possible to learn how to raise a child with CF. There are definitely days that are harder than others, but thru it all Christopher has become a fighter. We will never give up hope that CF will one day stand for Cure Found!
Daily, Christopher takes many different medications to stay as healthy as possible. He has to take digestive enzymes prior to eating so his body can absorb the vital nutrients he needs from the foods he eats. He does his vest treatments twice a day for 20 minutes when he is healthy and if he is sick, that can be increased to 3-4 times daily. This is EVERYDAY, CF never allows him to take a day off. There are times he has to do inhaled antibiotic treatments after his vest when fighting an infection. And there will be times he will have to stay in the hospital 1-2 weeks for IV antibiotic treatments. Even after doing all of this, Christopher still remains an energetic, happy, loving 2 year old that will do anything to make you laugh and smile with him.
Because of the support the Cystic Fibrosis Foundation receives, there have been tremendous medical advancements over the years. There is no cure for this disease...yet. With continued support, it really is not a matter of IF a cure will be found, it is a matter of WHEN a cure will be found. Please join us in Christopher's Fight, he will try to I am certain, but he can't do it without our help and YOURS!
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated June 15, 2022. To reduce the risk of COVID-19 the Foundation is taking steps to host safe events for our community. Please be advised that events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
To minimize the risk of COVID-19 infection, we ask that attendees at CF Foundation events follow these steps:
Where mandated, practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household.
Face masks are encouraged and should be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should only attend outdoor CF Foundation events where they are able to distance and stay within their family group.) NOTE: For events hosted by the CF Foundation, masks will be made available on-site, when possible.
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, and by covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19.
For indoor events, it is CFF policy to invite only one person with CF to be in-person at the event at a time. For outdoor events, people with CF should maintain a safe 6-foot distance from persons outside of their household at all times.
FOR YOUR SAFETY AND THE SAFETY OF OTHERS:
For the health and well-being of the CF community, we strongly encourage that participants be fully vaccinated and have received the CDC recommended booster shot when joining us in-person for the event.
Certain CF Foundation events may require vaccination to attend.
Participants are strongly encouraged to test within 24 hours prior of arrival at an event or meeting, or as close as possible to the time of departure (if traveling).
Please be advised certain events, localities, and venues may require you to be fully vaccinated and show proof of vaccination. We will communicate these requirements in event communications.
For events where the CF Foundation requires full vaccination, meeting participants must be fully vaccinated against COVID-19 at least two weeks before the date on which you will first attend the meeting. Registration and attendance at such events may require agreement to health and safety protocols and/or COVID liability waivers.
We are counting on the fact that you appreciate the potential consequences of exposing members of the CF community to COVID-19 and will not attend an event if you test positive, or have been recently exposed to COVID-19.
We cannot guarantee that all people present at the event, including participants, sponsors, volunteers, vendors, or others, have been fully vaccinated.