Breslin Family / Caitlin's Crew
Caitlin's Crew is once again back to work at taking on the fight to find a cure!
Cystic fibrosis is a devastating genetic disease that still affects approximately 30,000 children and young adults in the United States. Our daughter, Caitlin, as you know, has CF and is now living in Perry Hall, MD and is busy with the next chapter in her life as a recent bride, a young career professional and, her relative health is a tribute to each and every one of you who have given to this cause in the past. I thought I would share with you a message she is sharing this year in her efforts to raise funds to fight CF. It captures the essence of why we keep fighting...
"The research that has been done in my lifetime is INCREDIBLE and I truly believe I wouldn’t be standing here today if it wasn’t for the money raised through fundraisers like Great Strides! This past month I started a life changing drug called “Trikafta”. Trikafta is an incredible drug that has proven to improve lung function by 10% and higher! In my experience so far with Trikafta I’ve noticed that I have a dry cough for the first time in YEARS. If you’ve ever been around a CFer you know how wet our coughs are and how much mucus we have in our lungs so this is HUGE! I also finally feel like I can take a deep breath (something most people don’t even have to think about).
We are certainly getting closer to a cure because of all the donations made but we are not there yet! Trikafta is amazing but it is NOT a cure, it also only works for certain mutations meaning there is 10% of the CF community that don’t have a drug like Trikafta to slow the progression of the disease so we need to keep fighting!"
Our dream is that one day Caitlin will no longer have to spend over an hour a day doing the treatments that give her breath, and extra days. The drugs, like Trikafta, and therapeutic advances that have been achieved since her birth are extraordinary, if not miraculous, and are the direct result of generosity of our friends and family who have joined the Crew in the past. But, we want to find the cure!! We want CF to stand for CURE FOUND! We will keep fighting until it's done!
This year, Caitlin and the Breslin Family are walking in our local Great Strides walk on May 2nd in Hagerstown and we, once again, need your help to meet our fundraising goal. In addition, I am excited to tell you that we again are a National team with friends and family walking in Great Strides events in Annapolis, MD, Philadelphia, PA, New Orleans, LA and Durham, NC. If you can make the time, we would love to have you join the crew at any of these locations. Last year we raised over $35,000 in this team effort so the bar has been raised for this year!!!
If you can't join us for the walk, your generous gift will be used to help support the Foundation’s mission of finding a cure and improving the lives of those with CF. And, your gift is 100 percent tax deductible.
Making a donation is easy and secure. Just click the link below that says, "Click here to visit my personal page" to make a donation that will support our team. Any amount you can donate is greatly appreciated. If you wish to send a check instead, please make it out to "CF Foundation Great Strides" and mail in C/O Hugh Breslin, 14205 Marsh Pike, Hagerstown, MD 21740.
Thank you for supporting Caitlin's Crew, our family and Great Strides! Together, we can make a difference and “add tomorrows” to the lives of those with CF. Until it's done!!