Alright friends and family, you know the drill. We are about to embark on our fourth year fundraising as team, Strides for Sienna, for the Charlotte, Danbury and Syracuse chapters Great Strides event.
We walk for Sienna and everyone else battling this terrible disease. We hope you will support us in our efforts to find a cure for CF! Our goal is to keep Sienna's little lungs and body healthy enough to take advantage of all the new medicines and therapies coming to market - thanks to the last few decades of research and fundraising! Until a cure is found, Sienna does twice daily treatments when healthy, and three - four daily treatments when sick. At this time, her daily regimen includes inhaled medicines and chest percussion therapy, which she handles like a champ.
Real progress has been made in the search for a cure, but the lives of people with CF are still cut far too short. Almost weekly I hear of a child or young adult losing his/her battle with CF. There still is no cure for this devastating disease and we need to keep research moving forward!
By walking today, we are helping add tomorrows to the lives of people living with cystic fibrosis, like Sienna. Will you join us? If you can't make the walk in one of these locations, you can choose to support this cause so close to our heart by making a donation to our Great Strides fundraising campaign today. Your gift is 100-percent tax deductible.
If you would like to follow Sienna's story, check out my blog: www.asaltylifeforus.blogspot.com (NEW NAME).
Please support Sienna!
The Flaminio Family and Goodman Family
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Due to the COVID-19 pandemic, indoor events sponsored by the CF Foundation are strictly prohibited at this time. Scheduled outdoor events must adhere to strict requirements to minimize the risk of COVID-19 infection. Events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
IMPORTANT NOTE ON ATTENDANCE AT OUTDOOR FOUNDATION EVENTS:
To minimize the risk of COVID-19 infection, attendees at CF Foundation events must adhere to the following requirements:
Practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household at all times
Face masks strongly encouraged and expected to be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should not attend CF Foundation events where there is risk of interacting with someone outside of their household.)
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19. People with CF should maintain a safe 6-foot distance from persons outside of their household at all times.
FOR YOUR SAFETY AND THE SAFETY OF OTHERS:
For the health and wellbeing of the CF community, those eligible to be vaccinated are required to be fully vaccinated to join us in-person for the event. If you are not fully vaccinated, we invite you to participate virtually if that option exists.
We do not plan to ask for you to provide proof of vaccination. We are, however, counting on the fact that you appreciate the potential consequences of exposing members of the CF community to COVID and will abide by this requirement.
We cannot guarantee that all people in attendance at the event, including participants, sponsors, volunteers, and vendors, have been fully vaccinated.