Just look at this little face! Don't you want to just squeeze her?
We'd love it if you would participate in this year's Great Strides walk as part of Team Lilou, and since we're a national team, you can do just that from pretty much anywhere!
There are hundreds of Great Strides events across the USA throughout May and June. I guarantee there's an event near you.
REGISTRATION IS FREE!
There is tons of information about CF available, but if there is anything we'd like you to know about the disease it's this: it
is a progressive disease and there is no cure. Median life expectancy
for a CF patient with adequate medical care in the USA has recently been
raised from age 37 to age 41. While Liliane is healthy at the moment,
it takes quite a bit of work to keeps her that way. CF medications are
still referred to as life extending as opposed to life saving and likely
will continue to be until a cure is found.
The walk is entirely optional. You can walk with the group, or you can just hang back, eat some free food, dance to the band or DJ, or just meet lots of great people.
With the event being held outdoors, Great Strides tends to be a very social event as infection control policy prevents more than one Cystic Fibrosis patient in an enclosed space at one time.
There are dozens of activities set up for the kids- from Build Your Own Birdhouse to free bounce house time.
And, whether you participate in the actual walk or not, it's a FREE day out with the kids packed with activities designed to guarantee a Saturday afternoon nap time.
If that doesn't sell you on participating, I don't know what will.
Want to join us? Here's how:
1. You can join any of our teams across the country as a walker and help fundraise
by clicking the Join Our Team Button above.
You can lead your own team under our National Family team in a walk local to
you and help recruit others to walk with you by clicking Find a Walk and
following the prompts to register for a walk near you.
becoming a member of our team or just making a donation, you are joining a growing
group of people committed to finding a cure for Cystic Fibrosis. Together, we
are adding tomorrows to the lives of people living with CF by supporting the
search for a cure.
Thanks and God Bless,
The Shelton Family
Connect With Us
IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated June 15, 2022. To reduce the risk of COVID-19 the Foundation is taking steps to host safe events for our community. Please be advised that events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
To minimize the risk of COVID-19 infection, we ask that attendees at CF Foundation events follow these steps:
Where mandated, practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household.
Face masks are encouraged and should be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should only attend outdoor CF Foundation events where they are able to distance and stay within their family group.) NOTE: For events hosted by the CF Foundation, masks will be made available on-site, when possible.
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, and by covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19.
For indoor events, it is CFF policy to invite only one person with CF to be in-person at the event at a time. For outdoor events, people with CF should maintain a safe 6-foot distance from persons outside of their household at all times.
FOR YOUR SAFETY AND THE SAFETY OF OTHERS:
For the health and well-being of the CF community, we strongly encourage that participants be fully vaccinated and have received the CDC recommended booster shot when joining us in-person for the event.
Certain CF Foundation events may require vaccination to attend.
Participants are strongly encouraged to test within 24 hours prior of arrival at an event or meeting, or as close as possible to the time of departure (if traveling).
Please be advised certain events, localities, and venues may require you to be fully vaccinated and show proof of vaccination. We will communicate these requirements in event communications.
For events where the CF Foundation requires full vaccination, meeting participants must be fully vaccinated against COVID-19 at least two weeks before the date on which you will first attend the meeting. Registration and attendance at such events may require agreement to health and safety protocols and/or COVID liability waivers.
We are counting on the fact that you appreciate the potential consequences of exposing members of the CF community to COVID-19 and will not attend an event if you test positive, or have been recently exposed to COVID-19.
We cannot guarantee that all people present at the event, including participants, sponsors, volunteers, vendors, or others, have been fully vaccinated.