Thank you for taking the
time to visit my Great Strides page. This is our seventh year walking for Great
Strides and our fifth year as a national team. In this time Sarah has grown
into an amazing first-grader who is passionate about animals, and loves boogie
boarding and “body surfing” – which for her means flopping face-down into the
surf and hanging there just long enough to give me a heart attack before
popping up again and looking for another wave.
These days, when I ask
Sarah what she wants to be when she grows up, she says she wants to be a
veterinarian. However, she loves watching shows about wild animals on TV, so I
wonder if she may end up as a zoologist or wildlife biologist. At the moment
she mostly cares for her vast collection of plush animals and has a special
bond with our golden retriever Cooper.
We are told that CF kids
Sarah's age should have an average life expectancy in the mid-30s. This
achievement is remarkable given that 60 years ago most kids like Sarah didn't
make it to kindergarten. I am sure her goals and dreams will change many times
over the years, but my hope is for her to be able to pursue those dreams,
whatever they may be.
There still is no cure for
this devastating disease, but the Cystic Fibrosis Foundation has partnered with
biotech companies like Vertex Pharmaceuticals that are working to identify new
medications that can help correct the underlying defect that causes CF. One of
Sarah's mutations is the most common CF mutation, so the drugs currently in
clinical trials hold real promise for her. They may not make her
"normal" but they can make her a little stronger, and they prove that
it's possible to find better drugs that may help her someday track lions in the
savannah or care for kittens in the clinic.
Please help Sarah by
joining us on team Strolling for Sarah. Your company on the walk would mean so
much. The Champaign walk is on May 7. If you can't be there please consider
supporting a walker on our team. We are helping add tomorrows to the lives of
people living with Cystic Fibrosis!
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated June 15, 2022. To reduce the risk of COVID-19 the Foundation is taking steps to host safe events for our community. Please be advised that events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
To minimize the risk of COVID-19 infection, we ask that attendees at CF Foundation events follow these steps:
Where mandated, practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household.
Face masks are encouraged and should be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should only attend outdoor CF Foundation events where they are able to distance and stay within their family group.) NOTE: For events hosted by the CF Foundation, masks will be made available on-site, when possible.
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, and by covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19.
For indoor events, it is CFF policy to invite only one person with CF to be in-person at the event at a time. For outdoor events, people with CF should maintain a safe 6-foot distance from persons outside of their household at all times.
FOR YOUR SAFETY AND THE SAFETY OF OTHERS:
For the health and well-being of the CF community, we strongly encourage that participants be fully vaccinated and have received the CDC recommended booster shot when joining us in-person for the event.
Certain CF Foundation events may require vaccination to attend.
Participants are strongly encouraged to test within 24 hours prior of arrival at an event or meeting, or as close as possible to the time of departure (if traveling).
Please be advised certain events, localities, and venues may require you to be fully vaccinated and show proof of vaccination. We will communicate these requirements in event communications.
For events where the CF Foundation requires full vaccination, meeting participants must be fully vaccinated against COVID-19 at least two weeks before the date on which you will first attend the meeting. Registration and attendance at such events may require agreement to health and safety protocols and/or COVID liability waivers.
We are counting on the fact that you appreciate the potential consequences of exposing members of the CF community to COVID-19 and will not attend an event if you test positive, or have been recently exposed to COVID-19.
We cannot guarantee that all people present at the event, including participants, sponsors, volunteers, vendors, or others, have been fully vaccinated.