Thank you for taking the
time to visit my Great Strides page. This is our seventh year walking for Great
Strides and our fifth year as a national team. In this time Sarah has grown
into an amazing first-grader who is passionate about animals, and loves boogie
boarding and “body surfing” – which for her means flopping face-down into the
surf and hanging there just long enough to give me a heart attack before
popping up again and looking for another wave.
These days, when I ask
Sarah what she wants to be when she grows up, she says she wants to be a
veterinarian. However, she loves watching shows about wild animals on TV, so I
wonder if she may end up as a zoologist or wildlife biologist. At the moment
she mostly cares for her vast collection of plush animals and has a special
bond with our golden retriever Cooper.
We are told that CF kids
Sarah's age should have an average life expectancy in the mid-30s. This
achievement is remarkable given that 60 years ago most kids like Sarah didn't
make it to kindergarten. I am sure her goals and dreams will change many times
over the years, but my hope is for her to be able to pursue those dreams,
whatever they may be.
There still is no cure for
this devastating disease, but the Cystic Fibrosis Foundation has partnered with
biotech companies like Vertex Pharmaceuticals that are working to identify new
medications that can help correct the underlying defect that causes CF. One of
Sarah's mutations is the most common CF mutation, so the drugs currently in
clinical trials hold real promise for her. They may not make her
"normal" but they can make her a little stronger, and they prove that
it's possible to find better drugs that may help her someday track lions in the
savannah or care for kittens in the clinic.
Please help Sarah by
joining us on team Strolling for Sarah. Your company on the walk would mean so
much. The Champaign walk is on May 7. If you can't be there please consider
supporting a walker on our team. We are helping add tomorrows to the lives of
people living with Cystic Fibrosis!
Connect With Us
Foundation-Sponsored Indoor and Outdoor Events and Gatherings
The Foundation is closely following the evolving coronavirus outbreak. We will continue to monitor coronavirus guidance from the Centers for Disease Control and Prevention and assess whether we need to change any scheduled events.
To reduce the risk of getting and spreading germs at CF Foundation-sponsored events, we ask that everyone follow basic best practices by regularly cleaning your hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow, and maintaining a safe 6-foot distance from anyone with a cold or infection. Medical evidence shows that germs may spread among people with CF through direct and indirect contact, as well as through droplets that travel short distances when a person coughs or sneezes. These germs can lead to worsening symptoms and speed decline in lung function.
To further help reduce the risk of cross-infection, the Foundation's attendance policy recommends inviting only one person with CF to attend the indoor portion of a Foundation-sponsored event at a specific time. For the outdoor portion, the Foundation recommends that all people with CF maintain a safe 6-foot distance from each other at all times.