Welcome to the BELLE RAISERS Cystic Fibrosis Foundation Great Strides national team page! Please consider sponsoring and/or joining our walk in 2013! Annabelle's story continues. Please help her write it.
BACKGROUND Annabelle was diagnosed with Cystic Fibrosis on June 20, 2011, the Monday morning after Father's Day. CF is a genetic disease found in about 30,000 Americans and 70,000 people worldwide. Annabelle's parents, Mark and Jessica, like about 1 out of every 30 adults, are symptomless carriers of one CF gene, which came as quite an unpleasant surprise when Annabelle was diagnosed with CF. Her brother, Dominik, is also a symptomless carrier of one CF gene. In order to have CF, a person must inherit one CF gene from each parent. Thanks to newborn screening measures now practiced in all 50 states, Annabelle was diagnosed at a very early age and now receives the best treatment available from premier medical facilities here in North Carolina. While there is no cure at this time, medical advances are being made that give us hope that she will live a long, fulfilling life. Fundraisers like Great Strides are necessary to provide the resources necessary for the Cystic Fibrosis Foundation to continue to "fund the fight" against CF. Currently, there is no federal funding for research so families like ours rely upon the generosity of family, friends, and complete strangers to help us move closer to a cure. Annabelle's happy demeanor, tenacity and courage inspire hope and tears of joy. The outlook is bright for our sweet Carolina girl since children born today can plan for college and even having families of their own in the future. In the past, this simply was not the case as average life expectancy as recently as 20 years ago did not extend beyond the teenage years. With the love of her parents, twin brother Dominik, and family and friends like you, Annabelle will thrive. Her life and character will be defined by her personality and spirit, not this disease. ANY contribution you can make to our cause is greatly appreciated...more than we can express in words alone.
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated June 15, 2022. To reduce the risk of COVID-19 the Foundation is taking steps to host safe events for our community. Please be advised that events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
To minimize the risk of COVID-19 infection, we ask that attendees at CF Foundation events follow these steps:
Where mandated, practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household.
Face masks are encouraged and should be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should only attend outdoor CF Foundation events where they are able to distance and stay within their family group.) NOTE: For events hosted by the CF Foundation, masks will be made available on-site, when possible.
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, and by covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19.
For indoor events, it is CFF policy to invite only one person with CF to be in-person at the event at a time. For outdoor events, people with CF should maintain a safe 6-foot distance from persons outside of their household at all times.
FOR YOUR SAFETY AND THE SAFETY OF OTHERS:
For the health and well-being of the CF community, we strongly encourage that participants be fully vaccinated and have received the CDC recommended booster shot when joining us in-person for the event.
Certain CF Foundation events may require vaccination to attend.
Participants are strongly encouraged to test within 24 hours prior of arrival at an event or meeting, or as close as possible to the time of departure (if traveling).
Please be advised certain events, localities, and venues may require you to be fully vaccinated and show proof of vaccination. We will communicate these requirements in event communications.
For events where the CF Foundation requires full vaccination, meeting participants must be fully vaccinated against COVID-19 at least two weeks before the date on which you will first attend the meeting. Registration and attendance at such events may require agreement to health and safety protocols and/or COVID liability waivers.
We are counting on the fact that you appreciate the potential consequences of exposing members of the CF community to COVID-19 and will not attend an event if you test positive, or have been recently exposed to COVID-19.
We cannot guarantee that all people present at the event, including participants, sponsors, volunteers, vendors, or others, have been fully vaccinated.