Welcome to the BELLE RAISERS Cystic Fibrosis Foundation Great Strides national team page! Please consider sponsoring and/or joining our walk in 2013! Annabelle's story continues. Please help her write it.
BACKGROUND Annabelle was diagnosed with Cystic Fibrosis on June 20, 2011, the Monday morning after Father's Day. CF is a genetic disease found in about 30,000 Americans and 70,000 people worldwide. Annabelle's parents, Mark and Jessica, like about 1 out of every 30 adults, are symptomless carriers of one CF gene, which came as quite an unpleasant surprise when Annabelle was diagnosed with CF. Her brother, Dominik, is also a symptomless carrier of one CF gene. In order to have CF, a person must inherit one CF gene from each parent. Thanks to newborn screening measures now practiced in all 50 states, Annabelle was diagnosed at a very early age and now receives the best treatment available from premier medical facilities here in North Carolina. While there is no cure at this time, medical advances are being made that give us hope that she will live a long, fulfilling life. Fundraisers like Great Strides are necessary to provide the resources necessary for the Cystic Fibrosis Foundation to continue to "fund the fight" against CF. Currently, there is no federal funding for research so families like ours rely upon the generosity of family, friends, and complete strangers to help us move closer to a cure. Annabelle's happy demeanor, tenacity and courage inspire hope and tears of joy. The outlook is bright for our sweet Carolina girl since children born today can plan for college and even having families of their own in the future. In the past, this simply was not the case as average life expectancy as recently as 20 years ago did not extend beyond the teenage years. With the love of her parents, twin brother Dominik, and family and friends like you, Annabelle will thrive. Her life and character will be defined by her personality and spirit, not this disease. ANY contribution you can make to our cause is greatly appreciated...more than we can express in words alone.
Connect With Us
Due to the COVID-19 pandemic, indoor events sponsored by the CF Foundation are strictly prohibited at this time. Scheduled outdoor events must adhere to strict requirements to minimize the risk of COVID-19 infection. Events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
IMPORTANT NOTE ON ATTENDANCE AT OUTDOOR FOUNDATION EVENTS:
To minimize the risk of COVID-19 infection, attendees at CF Foundation events must adhere to the following requirements:
Practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household at all times
Face masks strongly encouraged and expected to be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should not attend CF Foundation events where there is risk of interacting with someone outside of their household.)
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19. People with CF should maintain a safe 6-foot distance from persons outside of their household at all times.
FOR YOUR SAFETY AND THE SAFETY OF OTHERS:
For the health and wellbeing of the CF community, those eligible to be vaccinated are required to be fully vaccinated to join us in-person for the event. If you are not fully vaccinated, we invite you to participate virtually if that option exists.
We do not plan to ask for you to provide proof of vaccination. We are, however, counting on the fact that you appreciate the potential consequences of exposing members of the CF community to COVID and will abide by this requirement.
We cannot guarantee that all people in attendance at the event, including participants, sponsors, volunteers, and vendors, have been fully vaccinated.