Welcome to our National Team TnT Great Strides walk page! I'm so glad you stopped by!
Our Great Strides journey is a very unique one, and actually began ten
years ago, when I met a woman whose newborn granddaughter, Faith, had
just been diagnosed with Cystic fibrosis. I became inspired to help them
find a cure, so I joined their Great Strides team, Team FaithFULL, and
began fundraising and spreading awareness about CF. Little did I know,
not only was I fundraising for a cure for thousands of young people... I
was actually fundraising for a cure for my own future children.
2008, I became a proud mommy of twin daughters, Taryn and Teagan. Everything
seemed perfect... until I got a call that no parent wants to get. Taryn's
newborn screen test showed that she tested positive for Cystic fibrosis.
Life seemed to stop for a moment, as the devastation set in. But just
as quickly, a wave of calmness and strength took over. I had been
unknowingly prepared for this. I knew all about CF. I had an amazing
support system of friends and family, and many other CF parents I had
met through my Great Strides volunteering. I knew all about the amazing
resources the CF Foundation has for parents and patients. I knew all
about the work they are doing to help find a cure. And I knew just how
close they were coming to one.
That year, I formed my first Great
Strides team, Carin' For Taryn, and with the help of one of my best
friends and fellow CF mom, Stephanie Davis (Team FaithFULL), we chaired
our first Great Strides Walk. Over 25 teams and 500 walkers showed up
that day to walk for a cure! In 2010, my daughter Taya was born... and
diagnosed with CF. So our team name Carin' For Taryn changed and became
Team TnT (for Taryn and Taya) and we became a National Team with the help of hundreds of friends
and family all across the nation, who have set up Team TnT walk teams in St. Louis, Chicago, Redding, Tahoe, and Sacramento! Collectively, we are helping to KABOOM Cystic fibrosis for good!
will be our EIGHTH year walking in Great Strides, and my eighth year
Chairing the event! Our Sacramento Great Strides Walk has grown tremendously
with close to 80 teams and 2000 walkers represented! In these past
eight years that we've organized the Walk, our collective efforts have
helped to raise over $1 MILLION DOLLARS... and over 90 cents of every
dollar raised goes straight to researching a cure! We've made many new
friends, helped get CF on the newborn screening test in CA and the
newest exciting news is the combo drug that was just approved for
Taryn's and Taya's specific mutations has just been deemed a
"Breakthrough Medication" by the FDA! We have seen HUGE progress over
the last few years, and it's all thanks to the generosity and support
from donors like YOU!
I fundraise and spread awareness for Taryn,
Taya, and the 75,000 others world-wide who battle CF, so they can have
the chance to live a HEALTHY, and LONG life. 50 years ago, CF kids
rarely lived to the age of 5. Today, the median age of life expectancy
is 41. With your help, we can soon make CF stand for Cure Found!
Join our team and help add tomorrows!
There are two
ways you can become a member of our National Family team.
1.) You can join any of our teams across the country as a walker and help fundraise
by clicking the Join Our Team Button above.
You can lead your own team under our National Family team in a walk local to
you and help recruit others to walk with you by clicking Find a Walk and
following the prompts to register for a walk near you.
becoming a member of our team and making a donation, you are joining a growing
group of people committed to finding a cure for cystic fibrosis. Together, we
are adding tomorrows to the lives of people living with CF by supporting the
search for a cure.
Thank you so much for your love and support as we add more tomorrows for Taryn, Taya, and the 75,000 others in this world fighting CF! We look forward to having you as a member of Team TnT!
Check out our inaugural Team TnT Video! 2015's video is coming soon!
Connect With Us
IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated June 15, 2022. To reduce the risk of COVID-19 the Foundation is taking steps to host safe events for our community. Please be advised that events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
To minimize the risk of COVID-19 infection, we ask that attendees at CF Foundation events follow these steps:
Where mandated, practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household.
Face masks are encouraged and should be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should only attend outdoor CF Foundation events where they are able to distance and stay within their family group.) NOTE: For events hosted by the CF Foundation, masks will be made available on-site, when possible.
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, and by covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19.
For indoor events, it is CFF policy to invite only one person with CF to be in-person at the event at a time. For outdoor events, people with CF should maintain a safe 6-foot distance from persons outside of their household at all times.
FOR YOUR SAFETY AND THE SAFETY OF OTHERS:
For the health and well-being of the CF community, we strongly encourage that participants be fully vaccinated and have received the CDC recommended booster shot when joining us in-person for the event.
Certain CF Foundation events may require vaccination to attend.
Participants are strongly encouraged to test within 24 hours prior of arrival at an event or meeting, or as close as possible to the time of departure (if traveling).
Please be advised certain events, localities, and venues may require you to be fully vaccinated and show proof of vaccination. We will communicate these requirements in event communications.
For events where the CF Foundation requires full vaccination, meeting participants must be fully vaccinated against COVID-19 at least two weeks before the date on which you will first attend the meeting. Registration and attendance at such events may require agreement to health and safety protocols and/or COVID liability waivers.
We are counting on the fact that you appreciate the potential consequences of exposing members of the CF community to COVID-19 and will not attend an event if you test positive, or have been recently exposed to COVID-19.
We cannot guarantee that all people present at the event, including participants, sponsors, volunteers, vendors, or others, have been fully vaccinated.