Our son Beckett just celebrated his 6th birthday on March 13th and it is hard to believe that we have walked and raised money for cystic fibrosis for 7 years at the Portland, Great Strides walk. We found out Beckett had cystic fibrosis in a genetic test less than a week before he was born, since that day we have learned a lot about advances in cystic fibrosis and have become increasingly hopeful for Beckett’s future. We have so much hope in the new drugs currently in trial and we know our fundraising has a direct impact on Beckett’s future.
Beckett is an energetic and kind boy. He is in Kindegarten this year! Beckett loves legos, reading, playing T ball and trampolining with his friends. He is a normal little boy who doesn’t realize any of his daily activities are out of the norm, but Beckett spends up to 2 hours a day in his vest, his nebulizer and takes many vitamins, prescriptions and enzymes to stay healthy each day.
This is another exciting year because Corwin Automotive has committed to matching Beckett’s Team up to $25,000.00! That means each dollar you donate is actually two dollars. Please donate to Beckett’s Team and your donation will be matched by our sponsor!
Thanks for your generosity!
Sean, Alli and Beckett
are approximately 30,000 Americans living with cystic fibrosis. They are moms,
dads, sisters, brothers, daughters, sons, friends and co-workers who struggle
every day just to breathe. We walk for them. Will you join us? There are two
ways you can become a member of our National Family team.
You can join any of our teams across the country as a walker and help fundraise
by clicking the Join Our Team Button above.
You can lead your own team under our National Family team in a walk local to
you and help recruit others to walk with you by clicking Find a Walk and
following the prompts to register for a walk near you.
becoming a member of our team and making a donation, you are joining a growing
group of people committed to finding a cure for cystic fibrosis. Together, we
are adding tomorrows to the lives of people living with CF by supporting the
search for a cure.
Great Strides is a
fun, family-friendly event that raises awareness and support for people with CF
and their families.
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
To reduce the risk of COVID-19 the Foundation is taking steps to host safe events for our community. Please be advised that events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
To help minimize the risk of COVID-19, we ask that attendees at CF Foundation events follow these steps:
Where mandated, practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household.
Face masks are encouraged and should be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should only attend outdoor CF Foundation events where they are able to distance and stay within their family group.)
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, and by covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19.
For indoor events, it is CFF policy to invite only one person with CF to be in-person at the event at a time. For outdoor events, people with CF should maintain a safe 6-foot distance from persons outside of their household at all times.
FOR YOUR SAFETY AND THE SAFETY OF OTHERS:
For the health and well-being of the CF community, we strongly encourage that participants be fully vaccinated and have received the CDC recommended booster shot when joining us in-person for the event.
Please be advised certain localities and venues may require you to be fully vaccinated and show proof of vaccination. We will communicate these requirements in event communications.
We are counting on the fact that you appreciate the potential consequences of exposing members of the CF community to COVID-19 and will not attend an event if you are feeling ill or have been recently exposed to COVID-19.
We cannot guarantee that all people in attendance at the event, including participants, sponsors, volunteers, vendors, or others, have been fully vaccinated.