Dear Family and Friends, This year the 2021 CF Great Strides walk is virtual on May 15th. We need your help to meet our fundraising goal. Your generous gift will be used to help support the Foundation’s mission of finding a cure and improving the lives of those with CF. And, your gift is 100 percent tax deductible. You are helping Ben and all the other people, who graciously fight this disease daily. Ben spends a few hours everyday doing breathing treatments and taking many medications to help him live a healthy life. Ben does all this in hopes that he will grow old and enjoy all that life has to offer. Even though the walk is virtual this year we are still fundraising to help make CF stand for Cure Found! Ben turned 13 on March 10th. I can't believe we have a TEENAGER! Every year we celebrate his birthday I can't help but think back to his birth. It was a long five months in the hospital, as he fought for life in the NICU. We know his progress is due in part to your generous donations. The average life expectancy continues to rise because of your donations. The Cystic Fibrosis Foundation is constantly making great advances, to prolong the lives of those battling this disease. It gives us hope for Ben's future. Ben is in 7th grade at Royal Oak Middle School. Ben has transitioned well to virtual school. He has had to be resilient throughout his life and this transition during Covid has come with ease. He's truly an adaptable child who takes life in stride. Ben started the miraculous new CF modulator, Trikafta, a year ago, March 4th. After one year on Trikafta Ben's lung function has significantly improved. He was in the hospital for an exacerbation last Feb/March right before Covid hit. Ben has been able to stay healthy and avoid any hospital admissions since then. Your donations have helped get this drug on the market to give those fighting CF a chance at living a healthy, long life. Cystic fibrosis is a devastating genetic disease that affects approximately 30,000 children and young adults in the United States. Research and care supported by the Cystic Fibrosis Foundation are making a huge difference in the lives of those with CF. Making a donation is easy and secure. Just click the link below that says, "Click here to visit my personal page" to make a donation that will support my team. Any amount you can donate is greatly appreciated. Your support will help fuel lifesaving CF programs. Thank you for supporting Great Strides! Together, we can make a difference and “add tomorrows” to the lives of those with CF.
Kati, Chris, and Ben
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.