This year the 2017 CF Great Strides walk is Sunday April 23th at the Detroit Zoo. The walk is quickly approaching. We need your help to meet our fundraising goal. Your generous gift will be used to help support the Foundation’s mission of finding a cure and improving the lives of those with CF. And, your gift is 100 percent tax deductible. You are helping Ben and all the other people, who graciously fight this disease daily. Ben spends a few hours a day doing breathing treatments and taking many medications to help him live a healthy life. Ben does all this in hopes that he will grow old and enjoy all that life has to offer. We would love for you to join our family at the Great Strides walk as well. Please join us.
I can't believe Ben will be 9 on March 10th. Every year we celebrate his birthday I can't help, but think back to his birth. It was a long five months in the hospital, as he fought for life in the NICU. We know his progress is due in part to your generous donations. The average life expectancy continues to rise because of your donations. The Cystic Fibrosis Foundation is constantly making great advances, to prolong the lives of those battling this disease. It gives us hope for Ben's future.
Ben is in 3nd grade at St. Mary's in Royal Oak. He loves school and sports. Ben plays basketball and soccer. Ben's favorite subjects are math and he learned to write cursive this year, which he has enjoyed. Ben is a big ball of energy and he likes to socialize in class, even when he shouldn't. I will admit that's what I got in trouble for at school. Hah. It amazes me how far he has come. Watching him do daily, routine activities makes me smile. We weren't sure what the future had in store for him, after his birth. His grace and humor shine through all he has to endure.
Cystic fibrosis is a devastating genetic disease that affects approximately 30,000 children and young adults in the United States. Research and care supported by the Cystic Fibrosis Foundation are making a huge difference in the lives of those with CF.
Making a donation is easy and secure. Just click the link below that says, "Click here to visit my personal page" to make a donation that will support my team. Any amount you can donate is greatly appreciated. Your support will help fuel lifesaving CF programs.
Thank you for supporting Great Strides! Together, we can make a difference and “add tomorrows” to the lives of those with CF.
Kati, Chris and Ben
Connect With Us
Due to the COVID-19 pandemic, indoor events sponsored by the CF Foundation are strictly prohibited at this time. Scheduled outdoor events must adhere to strict requirements to minimize the risk of COVID-19 infection. Events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
IMPORTANT NOTE ON ATTENDANCE AT OUTDOOR FOUNDATION EVENTS:
To minimize the risk of COVID-19 infection, attendees at CF Foundation events must adhere to the following requirements:
Practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household at all times
Face masks strongly encouraged and expected to be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should not attend CF Foundation events where there is risk of interacting with someone outside of their household.)
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19. People with CF should maintain a safe 6-foot distance from persons outside of their household at all times.