This year the 2017 CF Great Strides walk is Sunday April 23th at the Detroit Zoo. The walk is quickly approaching. We need your help to meet our fundraising goal. Your generous gift will be used to help support the Foundation’s mission of finding a cure and improving the lives of those with CF. And, your gift is 100 percent tax deductible. You are helping Ben and all the other people, who graciously fight this disease daily. Ben spends a few hours a day doing breathing treatments and taking many medications to help him live a healthy life. Ben does all this in hopes that he will grow old and enjoy all that life has to offer. We would love for you to join our family at the Great Strides walk as well. Please join us.
I can't believe Ben will be 9 on March 10th. Every year we celebrate his birthday I can't help, but think back to his birth. It was a long five months in the hospital, as he fought for life in the NICU. We know his progress is due in part to your generous donations. The average life expectancy continues to rise because of your donations. The Cystic Fibrosis Foundation is constantly making great advances, to prolong the lives of those battling this disease. It gives us hope for Ben's future.
Ben is in 3nd grade at St. Mary's in Royal Oak. He loves school and sports. Ben plays basketball and soccer. Ben's favorite subjects are math and he learned to write cursive this year, which he has enjoyed. Ben is a big ball of energy and he likes to socialize in class, even when he shouldn't. I will admit that's what I got in trouble for at school. Hah. It amazes me how far he has come. Watching him do daily, routine activities makes me smile. We weren't sure what the future had in store for him, after his birth. His grace and humor shine through all he has to endure.
Cystic fibrosis is a devastating genetic disease that affects approximately 30,000 children and young adults in the United States. Research and care supported by the Cystic Fibrosis Foundation are making a huge difference in the lives of those with CF.
Making a donation is easy and secure. Just click the link below that says, "Click here to visit my personal page" to make a donation that will support my team. Any amount you can donate is greatly appreciated. Your support will help fuel lifesaving CF programs.
Thank you for supporting Great Strides! Together, we can make a difference and “add tomorrows” to the lives of those with CF.
Kati, Chris and Ben
Connect With Us
Foundation-Sponsored Indoor and Outdoor Events and Gatherings
The Foundation is closely following the evolving coronavirus outbreak. We will continue to monitor coronavirus guidance from the Centers for Disease Control and Prevention and assess whether we need to change any scheduled events.
To reduce the risk of getting and spreading germs at CF Foundation-sponsored events, we ask that everyone follow basic best practices by regularly cleaning your hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow, and maintaining a safe 6-foot distance from anyone with a cold or infection. Medical evidence shows that germs may spread among people with CF through direct and indirect contact, as well as through droplets that travel short distances when a person coughs or sneezes. These germs can lead to worsening symptoms and speed decline in lung function.
To further help reduce the risk of cross-infection, the Foundation's attendance policy recommends inviting only one person with CF to attend the indoor portion of a Foundation-sponsored event at a specific time. For the outdoor portion, the Foundation recommends that all people with CF maintain a safe 6-foot distance from each other at all times.