Save the date - May 19st at Moonlight Beach for Cruisin' for Clare's 9th Annual Great Strides walk.
Walk with us. Donate. Breathe. Breathing is Believing
Dear Friends and Family,
It's that time of year again...to walk for awareness of Cystic Fibrosis. Please consider joining us on May 19th at 10am (check in 8:30am) for our 9th Great strides walk. This year, the walk has returned to Moonlight Beach!
Thank you to our dear friend, Audrey, for her handmade poster at last year's walk. We loved it so much, we now have a new "motto" for Cruisin' for Clare, "Breathing is Believing." We will never take breathing for granted.
Clare's daily routine includes a nebulizer and vest treatment before school, and again after school. Clare takes 5 pills before meals, along with a multivitamin that makes the size of my prenatal vitamins look tiny. :) We are thankful Clare has been healthy and hasn't needed to visit the hospital. When Clare is not managing her health, she loves to bake, play sports, do math problems (yes, that is correct!), art classes, girl scouts and spending time with friends. When you are 9, sleepovers are the highlight. The joy of being young is to fit in all these activities! For Clare, the joy of being young also means, staying healthy until new medicines come along. Recently, Vertex Pharmaceuticals had positive results for a future drug for Clare that will work for her genotype.
Please consider walking with our family, or donating to our national team in support of Cystic Fibrosis.
Walk with us. Donate. Breathe. So that Clare can breathe a little easier, too.
Lisa, Jeff, Bobby, Alex and Clare
Cruisin' for Clare's national walk locations : SAN DIEGO. BOSTON. IOWA. LOS ANGELES. OMAHA.
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Updated June 15, 2022. To reduce the risk of COVID-19 the Foundation is taking steps to host safe events for our community. Please be advised that events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
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