Dear Friends and Family,
It's that time of year again...to walk for awareness of Cystic Fibrosis. Please consider joining us on May 19th at 10am (check in 8:30am) for our 9th Great strides walk. This year, the walk has returned to Moonlight Beach!
Thank you to our dear friend, Audrey, for her handmade poster at last year's walk. We loved it so much, we now have a new "motto" for Cruisin' for Clare, "Breathing is Believing." We will never take breathing for granted.
Clare's daily routine includes a nebulizer and vest treatment before school, and again after school. Clare takes 5 pills before meals, along with a multivitamin that makes the size of my prenatal vitamins look tiny. :) We are thankful Clare has been healthy and hasn't needed to visit the hospital. When Clare is not managing her health, she loves to bake, play sports, do math problems (yes, that is correct!), art classes, girl scouts and spending time with friends. When you are 9, sleepovers are the highlight. The joy of being young is to fit in all these activities! For Clare, the joy of being young also means, staying healthy until new medicines come along. Recently, Vertex Pharmaceuticals had positive results for a future drug for Clare that will work for her genotype.
Please consider walking with our family, or donating to our national team in support of Cystic Fibrosis.
Walk with us. Donate. Breathe. So that Clare can breathe a little easier, too.
Love,
Lisa, Jeff, Bobby, Alex and Clare
Cruisin' for Clare's national walk locations : SAN DIEGO. BOSTON. IOWA. LOS ANGELES. OMAHA.
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ATTENDANCE POLICY:
Due to the COVID-19 pandemic, indoor events sponsored by the CF Foundation are strictly prohibited at this time. Scheduled outdoor events must adhere to strict requirements to minimize the risk of COVID-19 infection. Events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
IMPORTANT NOTE ON ATTENDANCE AT OUTDOOR FOUNDATION EVENTS:
To minimize the risk of COVID-19 infection, attendees at CF Foundation events must adhere to the following requirements:
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19. People with CF should maintain a safe 6-foot distance from persons outside of their household at all times.