My Team CF Story

My beautiful daughter Paige was diagnosed with Cystic Fibrosis (CF) when she was only 2 weeks old through the newborn screening. I was already a mother of a three-year-old without CF and I had a very healthy and normal pregnancy with Paige. There were no signs that my husband and I were CF carriers and no family history of CF. To say this news shocked us and flipped our world upside down is an understatement. In this past year, we have adjusted to our new normal of treatments, endless medication, increased handwashing, and constant sanitizing. We became overnight CF experts and worked diligently with our CF clinic to ensure our daughter receives the best care possible.

Paige started a new modulator called Orkambi and she began vest treatments twice a day. In a few short months when Paige is two, she will begin a life changing drug called Trikafta. We are lucky to have the happiest little girl who is a fighter!  

There is currently no cure for cystic fibrosis. By participating in Team CF, I am helping to end this disease for thousands of people impacted by CF.

Cystic fibrosis affects the lungs, pancreas, and other organs. The symptoms can vary from person to person, and as people with CF live longer than ever before, their disease can become more complicated, leading to serious health issues.

The Cystic Fibrosis Foundation has made extraordinary progress — including fostering the development of more than a dozen CF treatments — but these treatments are not a cure and not everyone can benefit from them. We must keep going.

Your support makes a difference.

By donating to my fundraising goal, you will help advance our mission for a cure for all. Please consider joining us and helping make CF stand for Cure Found.