My Team CF Story
Michael (14) and Dylan (12) are brothers who both have cystic fibrosis, a rare genetic disorder that causes life-threatening lung infections, severe digestive complications in addition to other serious health complexities. Cystic fibrosis is an extremely care-intensive diagnosis, requiring countless medications and specialized daily therapies just to stay healthy. Together, they take over 50 pills and do 1-2 hours of breathing treatments EVERY DAY just to keep their lungs healthy and to grow normally. You may never know looking at these brothers all they deal with, as they are both talented athletes (Michael is a skilled soccer player and Dylan an elite gymnast). However, all too often they are sidelined from their sports, school and social lives because they are faced with times of illness, doctors appointments, drug infusions, invasive surgeries, hospital stays and more.
The Cystic Fibrosis Foundation has been on a mission to extend and improve the quality of life for patients like Michael and Dylan. In 1955, kids with cystic fibrosis often didn’t live long enough to even attend elementary school. Today, from the remarkable vision and fierce determination to find a cure, patients are living well into their 40s and beyond. In recent years, breakthrough drugs and highly specialized therapies have been made available over 90% of patients with cystic fibrosis. These remarkable drugs have essentially corrected the basic defect of CF for these patients, providing a more normal life and markedly improved overall health.
However, due to their unique genetic make up, today there is still nothing for Michael and Dylan and so many other patients like them. CFF continues its pursuit of life-saving research and cutting-edge therapies to find a cure for EVERY PATIENT with cystic fibrosis. Every dollar donated will directly support these efforts and the tireless work of the Cystic Fibrosis Foundation.