My Team CF Story
Just two weeks after our son, Bowie, was born, we got a call that his newborn screen was positive for cystic fibrosis. Amongst the general exhaustion of having a newborn, we were completely blindsided. We imagined having a baby to be such a quintessential perfect, happy time, and don't get me wrong, it is the most wonderful thing we have ever done. But, after we got that call, for a brief period, we thought we were doomed and the life we imaged with our sweet baby boy was never going to happen. Thankfully, we were quickly put in contact with the CF clinic at Rady Childrens Hospital and with the Cystic Fibrosis Foundation. Slowly but surely, we realized that this diagnosis was definitely going to be life changing, but hopefully not life ending! We are now over 5 years later and life is great! There are lots of things we have to do to keep Bowie healthy and every year more things are added, but thanks to the support of our friends and family, and all the millions of people funding research, the life expectancy of a CF kid has sky rocketed. But, there is still no cure and the lives of people with CF are still cut far too short.
Bowie is amongst the approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, friends and co-workers who struggle every day just to breathe. We are surfing for all them and hope you will support us in our efforts. We are helping add tomorrows to the lives of people living with cystic fibrosis. We are surfing to make sure my son has the life we always imagined he would live.
Please come out and join us to support Bowie!
If you can't join the event, please help me reach my fundraising goal by donating to our Surf for CF fundraising campaign. Your gift will help add tomorrows to the lives of people with cystic fibrosis by supporting life-saving research and medical progress. Your gift is 100-percent tax deductible.