Our Team CF Story

Welcome to our Surf for CF Bowie's Bro's Team Page! 

We are thrilled that we can return to La Jolla Shores on September 9th for our surf event. And, this year Bowie is old enough to participate too!!! He and his buddies will be out in the water bring home the win!

For those of you that don’t know Bowie’s CF story…Just two weeks after Bowie was born, his parents got a call that his newborn screen was positive for cystic fibrosis. Amongst the general exhaustion of having a newborn, we were completely blindsided. Thankfully, we were quickly put in contact with the CF clinic at Rady Childrens Hospital and with the Cystic Fibrosis Foundation.  Slowly but surely, we realized that this diagnosis was definitely going to be life changing, but hopefully not life ending! We are now over 7 years later and life is great! There are things we have to do to keep Bowie healthy, but thanks to the support of our friends and family, and all the millions of people funding research, the life expectancy of a CF kid has sky rocketed. Especially with a new drug, Trikafta, that is making huge improvements in the lives of many people with CF including Bowie. Bowie started Trikafta last August and it has been a miracle. He even got off Pancreatic enzymes meaning his pancreas started working again. And his lung function is normal!!! We owe this all to the research funded by events like this!! But, there are still many CF patients with mutations that Trikafta does not help. There is still no cure and the lives of people with CF are still cut far too short.

Bowie is amongst the approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, friends and co-workers who struggle every day just to breathe. We are working to change this and to make sure Bowie lives the life we always imagined! Will you join us? All we need you to do to become a member of our team is click on the "Join our Team" button. Or if you can't make it, please consider donating to this wonderful cause. 

By participating, you are joining a growing group of people committed to finding a cure for cystic fibrosis. Together, we are adding tomorrows to the lives of people living with CF by supporting the search for a cure.