My Xtreme Hike Story
There are approximately 30,000 Americans living with Cystic Fibrosis (CF), a hereditary lung disease that primarily affects the lungs, and I am one of them.
When I was diagnosed with CF in 2006, the average life expectancy of someone with CF was 37 years old, with many CFers passing away before they even reached their teens. Now, in 2021, the average life expectancy has grown to 48 years old, and every year there are more and more medical advances that improve the quality of life for CFers and their life expectancy.
On July 24th, 2021 - I'll be turning 29 years old, and I felt there was no better way to celebrate another year of life than to raise money for the foundation that truly saved my life, the Cystic Fibrosis Foundation. Growing up with CF, we never thought that a time would come where "CF" stood for "Cure Found" and not "Cystic Fibrois." As a direct result of the Cystic Fibrosis Foundation's philanthropic mission, there have been many medications, such as Kalydeco and Trikafta, that have saved the lives of thousands of CF patients all across the country.
While more medications and therapies have been approved for CF patients across the country, there is still work to be done for many CFers who aren't able to take life saving medications like Kalydeco and Trikafta. We are so close to reaching the point where "CF" stands for "Cure Found," and with your contribution, we can make that become a reality.
I am incredibly lucky to have had 29 years on this earth, and there have been hundreds of thousands of people with Cystic Fibrosis who never had that opportunity - it's for them that we are raising this money, and I greatly appreciate your support.