My Xtreme Hike Story
Thanks to my procrastination, this year's fundraising will be short and sweet! Chrissy and I will head to the trails for our Xtreme Hike 2024 event on September 21st. Please help me reach my fundraising goal to support the Cystic Fibrosis Foundation by then and I will leave you alone for another year!
If you're not already familiar with my story, we lost my older brother Matt and my youngest sister Sarah to cystic fibrosis (CF). CF is a rare disease caused by a genetic mutation. It prevents people from breathing and digesting food normally and frequently leads to life threatening lung infections. It used to be fatal in childhood for nearly everyone who had it, but early detection and effective therapies have made big improvements in lifespan and quality of life.
The CF Foundation has done amazing work, funding research and gaining FDA approval for new treatments that address our particular DNA mutation, and adding several more to the clinical trial pipeline. My sister Anna has seen BIG improvements in her health as a result of the Trikafta therapy developed with CF Foundation funding!
The foundation has been there to support my family in many other practical ways over the years, so your support means a lot to me and my family.
Thank you,
Dave
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