Our Xtreme Hike Story

Jay and I are hiking again this year on June 7th for Lucas, our amazing son who is living with Cystic Fibrosis. He was born on April 2, 2013, with a Double Delta F508 strand of CF. This is the most common but severe strand a person can have. Lucas is pancreatic insufficient and can take anywhere from 25-35 pills a day when he eats on top of other medication. Lucas does one nebulizer treatment and about 30 mins a day of airway clearance. Lucas is now two years into taking Trikafta (a CF Medicine) and is doing amazing!! He is truly the strongest person we know. 

If you know Lucas, he is one incredible little kid. He has overcome so many challenges and is thriving. He loves soccer and basketball with all his heart and hopes to play professional soccer when he gets older!! He is loving, kind, funny, determined, passionate, and loves a good challenge!! Jason and I are so lucky to watch him, and Grace grow up!! We vowed the day he was born that we would never stop fighting for him and we haven't. 

We are hiking 26 miles together to show Lucas that he doesn't have to fight alone. We are pushing ourselves to accomplish this challenge and raise money as this is one day of our lives compared to every day of his!! We may not know what it's like to take medicine or be faced with certain challenges, but we know what it takes to make it up and down this mountain. We are doing this to show Lucas all the love and support he receives and the future he will have!