Our Xtreme Hike Story
Who is Taz?
Taz is 12 year old catcher on his Little League team, who earned his nickname for the ferocity, tenacity and intensity of his game. He is also a boy who is living with CF.
Nate (aka Taz) is now a married man, father of three, no longer goes by that nickname, but still lives with that ferocity, tenacity and intensity, and also with CF.
What is Team Taz?
Team Taz is Susan and Jay, Jacob and Tania, Melinda and Greg, and others yet to be identified: some of us hiking, others volunteering, and rest cheerleading the crew who tackles this crazy 26 mile -in- one- day fundraising hike in the Berkshires . Anyone who wants to join us is more than welcome! Let us know.
Why do we do this?
Cystic Fibrosis is a congenital disorder that affects approximately 1 in 2500 babies born in the US. CF affects the lungs as well as other organs including the pancreas, kidneys, liver, intestines, and most exocrine glands. There is no cure, but over the last 30 years enormous progress has been made in treatment and the average life expectancy has changed from 12 years to close to 50 years. In the last 5 years, thanks to a research partnership between the Cystic Fibrosis Foundation and Vertex Pharmaceutical, there have been dramatic advances in disease modulating treatment that are life enhancing and extending.
But… there is no cure yet, and not everyone benefits from (or can afford) the treatment.
So… We hike. For treatments that work for everyone. For access to care. And for a CURE.
Please consider making a donation to Team Taz by following the instructions on this page.
We thank you for your support.