Our Xtreme Hike Story
Thank you for visiting our team page!
Cystic fibrosis is a life-shortening, genetic disease found in about 30,000 people in the U.S. that causes persistent lung infections and limits the ability to breath over time. Those living with this disease are moms, dads, sisters, brothers, daughters, sons, friends, and co-workers -- all struggling each day just to breathe.
As many of you know our daughter Norah was diagnosed with CF about a week after she was born. She's eight today and considering all she's had to deal with she is in really great health. Since birth Norah has had to deal with taking pills every single time she eats with almost no exceptions. She has endured countless hours of breathing treatments and physical therapy every single day since she was born. She visits CF clinic four times a year, a two hour drive each way, and countless lung capacity tests, blood draws, and X-Rays. With all this, Norah is quite lucky. She has fared much better than many children her age. For this we are eternally grateful.
Our team is hiking in support of more than Norah though. We also hike to support of little Carys and to remember Aaron, both afflicted with this disease as well. More than this though, the funds raised from this event and others go toward research into making the lives of our children and so many children worldwide affected by CF. Research that has already made incredible imporvements in the lives of CF patients, and even increased life expectancy significantly.
Please consider supporting our team, or if you're really brave, join us as we hike for a cure on June 15, 2019.