My Xtreme Hike Story
As many of you know our daughter Norah was diagnosed with CF about a week after she was born. She's about to turn eight in a few weeks, and considering all she's had to deal with she is in really great health. Funds raised form events like this have funded new therapies, and treatments. It has even been a part of the development of Kalydeco, and recently Trikafta, the latter of which has shown to be a game changer, and life saver for a huge number of CF Patients. But there's still a lot of work to be done.
Our team is hiking in support of more than Norah though. We also hike to support little Carys and to remember Aaron, both afflicted with this disease too.
Please consider supporting our team, or if you're really brave, join us as we hike for a cure on September 26, 2020.