My Xtreme Hike Story

On February 17, 2016 our lives changed in a very unexpected way when one of our twin sons, Kiran, was diagnosed with Cystic Fibrosis. Cystic Fibrosis is a rare, life-shortening genetic disease that affects approximately 40,000 Americans and just 100,000 people worldwide.  What felt like earth shattering news initially, has turned into part of our daily lives and routine. Kiran is strong-willed, precocious and compassionate and we know that his future is bright due to the work of the Cystic Fibrosis Foundation. 

Sixty years ago, most children with CF did not live long enough to attend elementary school, but thanks to foundation-based research and care, many people with CF are now living into their forties and beyond– achieving milestones once thought not possible, such as attending college, pursuing careers, and having a family of their own.

While there has been significant progress in treating this disease, there is still no cure and too many lives are cut far too short. By participating in the Xtreme Hike, we are helping add tomorrows to the lives of all people living with CF today.  I am so excited to take on this challenge with my dear friends Jessie, Meg, Sarah, Erica, and Elizabeth by my side. This is a journey of passion and determination as well as an opportunity to make a difference in the lives of people with CF- we are ready for the trail ahead. 

Please make a difference and support me by giving to Team Kiran today.  A donation of any amount is truly meaningful  to our mission. 

With love and gratitude, 

Carolyn