My Xtreme Hike Story
On June 10th I will be hiking 25 miles through the Berkshires to help raise money for the Cystic Fibrosis Foundation. Carolyn is my dear friend from college and her son, Kiran, lives with Cystic Fibrosis, a rare, life-shortening genetic disease that affects approximately 30,000 Americans and just 70,000 people worldwide.
Kiran is an active 2nd grader and has remained healthy and strong, in large part thanks to the drug developments in recent years. He began taking a new therapy this winter and he has seen improvements in his lung function, digestion and overall health as a result. His parents are thrilled with his progress
While significant progress has been made in treating this disease, there is still no cure and too many lives are cut far too short. One of those lives was Sean Sullivan, who passed away last year. Sean was a double lung recipient, a dedicated advocate for the Donate Life movement and incredibly active within the CF community. His passing reconnected me with my childhood best friend, Jill, who was the love of his life.
This cause is also incredibly special to me on a professional level, as my career in pharma has been dedicated to supporting people living with rare genetic diseases. I’m continually inspired by the individuals/families fighting this disease, as they are steadfast in their advocacy and mission to find a cure.
Please make a difference and support me by giving to Team Kiran today. A donation of any amount is truly meaningful to our mission.