My Xtreme Hike Story

​Once again, I am hitting the trails in the Cystic Fibrosis Foundation Xtreme Hike event to fundraise in support of the Foundation’s mission of finding a cure for CF. On June 8th, I’ll join my parents and the rest of Patrick’s Posse in the Berkshires to hike ~20 miles (views will be just a little different from Vail last year…).  

My brother Patrick was diagnosed with cystic fibrosis when he was born, almost 24 years ago. CF is a chronic genetic disease that causes mucus to build up in the lungs, digestive system, & elsewhere in the body. Because of this, Patrick’s day to day life looks a bit different from most people’s. Growing up, Patrick would spend multiple hours a day doing nebulizers and chest percussion therapy, not to mention the 8+ pills he’d take with each meal. 

For the past 4 years, Patrick has been lucky to have access to Trikafta, a life-changing CF drug developed by Vertex. Access to Trikafta & other CF drugs has dramatically improved the lives of thousands of people with CF. These new CF drugs are not available to every person with CF, though, and they are not a cure. My family will continue hiking until a cure is available for everyone. 

Please consider donating to help make CF stand for Cure Found!