My Xtreme Hike Story
This year, I am doing something a little extreme in the fight against Cystic Fibrosis. I am going to participate in a one day, rim-to-rim hike of the Grand Canyon. Over the past year, a fantastic new treatment against Cystic Fibrosis was introduced. It has made a huge difference in the day-to-day health of 90% of those with Cystic Fibrosis. My daughter, Alice, is one of the 10% that the treatment doesn’t help. Our fight isn’t over. I’m going to keep doing what I can to help raise money for a treatment for Alice and all those with rare and nonsense mutations.
Cystic fibrosis is a rare, life-shortening, genetic disease found in about 30,000 people in the U.S., which causes persistent lung infections and limits the ability to breathe over time. Sixty years ago, most children with cystic fibrosis did not live long enough to attend elementary school, but thanks to new research and care, many people with CF are now living into their forties – achieving milestones once thought not possible, such as attending college, pursuing careers, and having a family of their own.
Please make a difference and support me by giving to my Xtreme Hike fundraising campaign today. Donate an amount that is meaningful to you, thanks!